ReviewCurrent opinion in rheumatology2016
Improving care delivery and outcomes in pediatric rheumatic diseases.
Review in Current opinion in rheumatology, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 47 citations in OpenAlex.
- Juvenile Idiopathic Arthritis Registry at King Abdullah Specialized Children's Hospital (JIAR-KASCH) in Riyadh, Saudi Arabia.Saudi medical journal · 2026Article
- A Canadian Advanced Physiotherapist Practitioner Shared-Care Model in Pediatric Rheumatology Offers Safe and Quality Care in the Management of Juvenile Idiopathic Arthritis-Comparing Key Performance Indicators with the PR-COIN Registry.Children (Basel, Switzerland) · 2025Article
- The Academic Community Early Psychosis Intervention Network: Toward building a novel learning health system across six US states.Learning health systems · 2025Article
- Forging a learning health system for early psychosis: Insights from the academic community EPINET.Schizophrenia research · 2025Article
- Caregiver experiences and needs in pediatric rheumatic disease: a mixed-methods systematic review protocol.Systematic reviews · 2025Article
- The role of patients, caregivers, and communities in Learning Health Systems: a narrative review.Frontiers in health services · 2025Review
- Quality indicators for care in juvenile idiopathic arthritis.Journal of rheumatic diseases · 2024Article
- Intra-articular corticosteroid utilization and characterizations of use in juvenile idiopathic arthritis within the PR-COIN registry.Frontiers in pediatrics · 2024Article
- Key data elements for a successful pediatric rheumatology virtual visit: a survey within the PR-COIN network.Frontiers in pediatrics · 2024Article
- Electronic health record modification and dashboard development to improve clinical care in pediatric rheumatology.Frontiers in pediatrics · 2024Article
- The critical role of parents within a Learning Health Network.Frontiers in pediatrics · 2024Article
- Enhancing Care Partnerships Using a Rheumatology Dashboard: Bringing Together What Matters Most to Both Patients and Clinicians.ACR open rheumatology · 2023Article
- Article
- Co-design of an Electronic Dashboard to Support the Coproduction of Care in Pediatric Rheumatic Disease: Human-Centered Design and Usability Testing.Journal of participatory medicine · 2022Article
- The Development of the Rheumatology Informatics System for Effectiveness Learning Collaborative for Improving Patient-Reported Outcome Collection and Patient-Centered Communication in Adult Rheumatology.ACR open rheumatology · 2021Article
- Scaling Beyond Early Adopters: a Content Analysis of Literature and Key Informant Perspectives.Journal of general internal medicine · 2021Article
- Identification of Five Quality Needs for Rheumatology (Text Analysis and Literature Review).Frontiers in medicine · 2021Review
- Optimizing Fertility in Primary Ovarian Insufficiency: Case Report and Literature Review.Frontiers in genetics · 2021Article
- Establishing an international awareness day for paediatric rheumatic diseases: reflections from the inaugural World Young Rheumatic Diseases (WORD) Day 2019.Pediatric rheumatology online journal · 2020Article
- A Canadian evaluation framework for quality improvement in childhood arthritis: key performance indicators of the process of care.Arthritis research & therapy · 2020Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 1 institution in 1 country.
Funding
Abstract
purpose of reviewThis article highlights efforts in pediatric rheumatology related to optimizing the care provided to patients with pediatric rheumatic diseases and describes various approaches to improve health outcomes. RECENT
findingsRecent studies report low rates of remission, frequent occurrence of comorbidities, disease damage, and decreased health-related quality of life in pediatric rheumatic diseases. The Pediatric Rheumatology Care and Outcomes Improvement Network is a quality improvement learning network that has demonstrated improvement in the process of care measures through use of a centralized patient registry, and interventions, including previsit planning, population management, shared decision making, and patient/parent engagement. A pediatric rheumatology patient-powered research network was established to enable patient and caregiver participation in setting research priorities and to facilitate data sharing to answer research questions. Quality measure development and benchmarking are proceeding in multiple pediatric rheumatic diseases. SUMMARY: The review summarizes the current efforts to improve care delivery and outcomes in pediatric rheumatic diseases through a learning health system approach that harnesses knowledge from the clinical encounter to serve quality improvement, research, and discovery. Incorporating standard approaches to medication treatment plans may reduce variation in care, including using the patient voice to design research studies to bring focus on more patient relevant outcomes. VIDEO ABSTRACT: http://links.lww.com/COR/A28.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.