ArticleJournal of medical Internet research2016
Crowdsourcing Diagnosis for Patients With Undiagnosed Illnesses: An Evaluation of CrowdMed.
Article in Journal of medical Internet research, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 2 of them syntheses that pooled it.
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Who cites it
21 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- A systematic review of natural language processing and text mining of symptoms from electronic patient-authored text data.International journal of medical informatics · 2019Pooled it
- Mapping of Crowdsourcing in Health: Systematic Review.Journal of medical Internet research · 2018Pooled it
- Rising to the Challenge of Rare Diagnoses.Journal of general internal medicine · 2025Article
- Experimental evidence for structured information-sharing networks reducing medical errors.Proceedings of the National Academy of Sciences of the United States of America · 2023Article
- BargCrEx: A System for Bargaining Based Aggregation of Crowd and Expert Opinions in Crowdsourcing.Group decision and negotiation · 2022Article
- [Digital diagnostic support in rheumatology].Zeitschrift fur Rheumatologie · 2021Review
- Rare disease patient matchmaking: development and outcomes of an internet case-finding strategy in the Undiagnosed Diseases Network.Orphanet journal of rare diseases · 2021Article
- Unity Is Intelligence: A Collective Intelligence Experiment on ECG Reading to Improve Diagnostic Performance in Cardiology.Journal of Intelligence · 2021Article
- Development of a Social Network for People Without a Diagnosis (RarePairs): Evaluation Study.Journal of medical Internet research · 2020Article
- Phenotate: crowdsourcing phenotype annotations as exercises in undergraduate classes.Genetics in medicine : official journal of the American College of Medical Genetics · 2020Article
- Examining Peer-to-Peer and Patient-Provider Interactions on a Social Media Community Facilitating Ask the Doctor Services.Proceedings of the ... International AAAI Conference on Weblogs and Social Media. International AAAI Conference on Weblogs and Social Media · 2020Article
- Sharing Is Caring-Data Sharing Initiatives in Healthcare.International journal of environmental research and public health · 2020Review
- Differential Diagnosis Assessment in Ambulatory Care With an Automated Medical History-Taking Device: Pilot Randomized Controlled Trial.JMIR medical informatics · 2019Article
- Validity of Online Screening for Autism: Crowdsourcing Study Comparing Paid and Unpaid Diagnostic Tasks.Journal of medical Internet research · 2019Article
- Balancing Between Privacy and Patient Needs for Health Information in the Age of Participatory Health and Social Media: A Scoping Review.Yearbook of medical informatics · 2018Article
- [Computer-assisted diagnosis of rare diseases].Der Internist · 2018Article
- From second to hundredth opinion in medicine: A global consultation platform for physicians.NPJ digital medicine · 2018Article
- North American Public Opinion Survey on the Acceptability of Crowdsourcing Basic Life Support for Out-of-Hospital Cardiac Arrest With the PulsePoint Mobile Phone App.JMIR mHealth and uHealth · 2017Article
- Understanding Patient Questions about their Medical Records in an Online Health Forum: Opportunity for Patient Portal Design.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2017Article
- The Impact of an Online Crowdsourcing Diagnostic Tool on Health Care Utilization: A Case Study Using a Novel Approach to Retrospective Claims Analysis.Journal of medical Internet research · 2016Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
backgroundDespite visits to multiple physicians, many patients remain undiagnosed. A new online program, CrowdMed, aims to leverage the "wisdom of the crowd" by giving patients an opportunity to submit their cases and interact with case solvers to obtain diagnostic possibilities.
objectiveTo describe CrowdMed and provide an independent assessment of its impact.
methodsPatients submit their cases online to CrowdMed and case solvers sign up to help diagnose patients. Case solvers attempt to solve patients' diagnostic dilemmas and often have an interactive online discussion with patients, including an exchange of additional diagnostic details. At the end, patients receive detailed reports containing diagnostic suggestions to discuss with their physicians and fill out surveys about their outcomes. We independently analyzed data collected from cases between May 2013 and April 2015 to determine patient and case solver characteristics and case outcomes.
resultsDuring the study period, 397 cases were completed. These patients previously visited a median of 5 physicians, incurred a median of US $10,000 in medical expenses, spent a median of 50 hours researching their illnesses online, and had symptoms for a median of 2.6 years. During this period, 357 active case solvers participated, of which 37.9% (132/348) were male and 58.3% (208/357) worked or studied in the medical industry. About half (50.9%, 202/397) of patients were likely to recommend CrowdMed to a friend, 59.6% (233/391) reported that the process gave insights that led them closer to the correct diagnoses, 57% (52/92) reported estimated decreases in medical expenses, and 38% (29/77) reported estimated improvement in school or work productivity.
conclusionsSome patients with undiagnosed illnesses reported receiving helpful guidance from crowdsourcing their diagnoses during their difficult diagnostic journeys. However, further development and use of crowdsourcing methods to facilitate diagnosis requires long-term evaluation as well as validation to account for patients' ultimate correct diagnoses.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.