SynthesisDementia (London, England)2018
How people come to recognise a problem and seek medical help for a person showing early signs of dementia: A systematic review and meta-ethnography.
Synthesis in Dementia (London, England), 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
40 citing papers in PubMed, 5 syntheses or guidelines pooled it, 67 citations in OpenAlex.
- Meta-analyses of personality change from the preclinical to the clinical stages of dementia.Ageing research reviews · 2025Pooled it
- Time to Diagnosis in Dementia: A Systematic Review With Meta-Analysis.International journal of geriatric psychiatry · 2025Pooled it
- Alzheimer's Association clinical practice guideline for the Diagnostic Evaluation, Testing, Counseling, and Disclosure of Suspected Alzheimer's Disease and Related Disorders (DETeCD-ADRD): Executive summary of recommendations for primary care.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Guideline
- From suspicion of cognitive decline to dementia diagnosis: a systematic review of healthcare professionals' considerations and attitudes.Age and ageing · 2025Pooled it
- What is the relationship between people with dementia and their caregiver's illness perceptions post-diagnosis and the impact on help-seeking behaviour? A systematic review.Dementia (London, England) · 2021Pooled it
- Challenges and needs in dementia care: people with dementia and family caregivers' experiences from diagnosis to follow-up in Swedish primary care: a qualitative study.Scandinavian journal of primary health care · 2026Article
- Coping Styles Predict Timing of Dementia Diagnosis: Evidence From DETERMIND.International journal of geriatric psychiatry · 2026Article
- Reliability and quality of cognitive impairment educational content on Douyin and Bilibili: A cross-sectional content analysis.Medicine · 2026Article
- Latinos' appraisals of and responses to memory problems.Journal of health psychology · 2026Article
- The Impact of Dementia Caregiving on the Health of the Spousal Caregiver.Medicina (Kaunas, Lithuania) · 2026Review
- After diagnosis, place matters: the role of neighborhood built environment in aging in place among older adults with cognitive impairment.The journals of gerontology. Series B, Psychological sciences and social sciences · 2026Article
- Self-Perceptions of Aging in Older Adults: A Network Analysis of Clinical and Non-Clinical Samples.Brain sciences · 2026Article
- Article
- Exploring representation of people without cohabiting carers in research on help-seeking for dementia diagnosis: a scoping review protocol.Frontiers in public health · 2026Article
- Navigating Alzheimer's Disease in Primary Care: Practical Strategies for Diagnosis and Management.International journal of general medicine · 2026Review
- Article
- The Cognitive and Neuroimaging for Neurodegenerative Disorders Study (CogNID): design and initial findings from real-world clinical practice.Frontiers in psychiatry · 2025Article
- Assessing the impact of an online dementia awareness initiative co-created with and for English, Arabic and Vietnamese speaking communities: A case study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Facilitators and barriers of help-seeking for persons with dementia in Asia-findings from a qualitative study of informal caregivers.Frontiers in public health · 2024Article
- A Multidimensional, Person-Centered Framework for Functional Assessment in Dementia: Insights from the 'What', 'How', 'To Whom', and 'How Much' Questions.Journal of Alzheimer's disease : JAD · 2024Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
Evidence suggests that there is usually a long delay between noticing first signs of dementia and seeking medical help. We conducted a systematic review of what people experience and how they make decisions during this time, and used a meta-ethnographic approach to synthesise the findings. Screening and quality assessment resulted in nine studies eligible for inclusion. People with dementia mainly report experiencing memory lapses, while carers focus on more subtle changes in personality. People respond to these changes in one of three ways: 1) they discount them as normal; 2) they reserve judgement as to their cause and significance, or 3) they misattribute them. Pivotal events can finally trigger help seeking. Active reflection and seeking of further evidence may lead to earlier recognition of the possibility of dementia and the need to seek help; it also reduces the risk of a pivotal event. Public education should aim to improve recognition of more subtle signs and to encourage repeated evaluation and reflection.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.