ArticleSexually transmitted infections2016
"It pains me because as a woman you have to breastfeed your baby": decision-making about infant feeding among African women living with HIV in the UK.
Article in Sexually transmitted infections, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
36 citing papers in PubMed, 1 synthesis or guideline pooled it, 67 citations in OpenAlex.
- Mothers' Experiences of Formula Feeding Support in the UK: A Qualitative Systematic Review.Maternal & child nutrition · 2026Pooled it
- Perinatal HIV in Europe: Clinical Advances and Psychosocial Challenges-A Scoping Review.Tropical medicine and infectious disease · 2026Review
- Multi-disciplinary support of infant feeding choice for parents living with HIV: experience across a guideline change.Frontiers in reproductive health · 2026Article
- Infant feeding decisions among people living with human immunodeficiency virus in the United States: a pilot study.Frontiers in reproductive health · 2026Article
- Migrant women's experiences of HIV prevention and care in Europe: a qualitative evidence synthesis.Journal of migration and health · 2026Review
- Understanding practices of lactation and infant feeding together with women with HIV: the UPLIFT observational study protocol.Frontiers in reproductive health · 2026Article
- "It's exactly what's needed": a call to action for breastmilk studies of vertical HIV transmission in high-income countries.Frontiers in reproductive health · 2026Article
- "My body my baby": a qualitative study examining drivers of infant-feeding choices among women living with HIV in Philadelphia, United States.AIDS care · 2025Article
- Hearing the Silence and Silenced: Co-Producing Research on Infant-Feeding Experiences and Practices With Black Women With HIV.Sociology of health & illness · 2025Article
- Infant feeding knowledge among women living with HIV and their interaction with healthcare providers in a high-income setting: a longitudinal mixed methods study.International breastfeeding journal · 2024Article
- How women living with HIV in the UK manage infant-feeding decisions and vertical transmission risk - a qualitative study.BMC public health · 2024Article
- The Mental Health Effects and Experiences of Breastfeeding Decision-Making Among Postpartum Women Living with HIV.AIDS and behavior · 2024Article
- "We decided together": a qualitative study about women with HIV navigating infant-feeding decisions with the father of their children.BMC pregnancy and childbirth · 2024Article
- 2023 updated guidelines on infant feeding and HIV in the United States: what are they and why have recommendations changed.Topics in antiviral medicine · 2023Article
- Article
- Knowledge Production on Congenital Chagas Disease across Time, Borders and Disciplines: A Comprehensive Scoping Review.Tropical medicine and infectious disease · 2023Article
- Infant feeding for people living with HIV in high resource settings: a multi-disciplinary approach with best practices to maximise risk reduction.Lancet regional health. Americas · 2023Review
- Exploring the Breastfeeding Desires and Decision-Making of Women Living with HIV in the Netherlands: Implications for Perinatal HIV Management in Developed Countries.Breastfeeding medicine : the official journal of the Academy of Breastfeeding Medicine · 2023Article
- Antiretroviral Options and Treatment Decisions During Pregnancy.Paediatric drugs · 2023Review
- Breastfeeding grief after chest masculinisation mastectomy and detransition: A case report with lessons about unanticipated harm.Frontiers in global women's health · 2023Article
Corrections and comments
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Authors and funding
7 authors at 6 institutions in 1 country.
Funding
Abstract
objectivesUK guidance advises HIV-positive women to abstain from breast feeding. Although this eliminates the risk of postnatal vertical transmission of HIV, the impact of replacement feeding on mothers is often overlooked. This qualitative study examines, for the first time in the UK, decision-making about infant feeding among African women living with HIV.
methodsBetween 2010 and 2011, we conducted semistructured interviews with 23 HIV-positive African women who were pregnant or had recently given birth. We recruited participants from three HIV antenatal clinics in London.
resultsWomen highlighted the cultural importance of breast feeding in African communities and the social pressure to breast feed, also describing fears that replacement feeding would signify their HIV status. Participants had significant concerns about physical and psychological effects of replacement feeding on their child and felt their identity as good mothers was compromised by not breast feeding. However, almost all chose to refrain from breast feeding, driven by the desire to minimise vertical transmission risk. Participants' resilience was strengthened by financial assistance with replacement feeding, examples of healthy formula-fed children and support from partners, family, peers and professionals.
conclusionsThe decision to avoid breast feeding came at considerable emotional cost to participants. Professionals should be aware of the difficulties encountered by HIV-positive women in refraining from breast feeding, especially those from migrant African communities where breast feeding is culturally normative. Appropriate financial and emotional support increases women's capacity to adhere to their infant-feeding decisions and may reduce the emotional impact.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.