Between Openness and Privacy in Genomics.

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

Who cites it

20 citing papers in PubMed.

1. Sync fast and solve things-best practices for responsible digital health.NPJ digital medicine · 2024
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2. The Buzz Surrounding Precision Medicine: The Imperative of Incorporating It into Evidence-Based Medical Practice.Journal of personalized medicine · 2023
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3. Ten simple rules for improving research data discovery.PLoS computational biology · 2022
   Article
4. Genetic data sharing and artificial intelligence in the era of personalized medicine based on a cross-sectional analysis of the Saudi human genome program.Scientific reports · 2022
   Article
5. Public willingness to participate in personalized health research and biobanking: A large-scale Swiss survey.PloS one · 2021
   Article
6. Using Personal Genomic Data within Primary Care: A Bioinformatics Approach to Pharmacogenomics.Genes · 2020
   Article
7. Sharing data for future research-engaging participants' views about data governance beyond the original project: a DIRECT Study.Genetics in medicine : official journal of the American College of Medical Genetics · 2019
   Article
8. Motivations for data sharing-views of research participants from four European countries: A DIRECT study.European journal of human genetics : EJHG · 2019
   Article
9. The Bermuda Triangle: The Pragmatics, Policies, and Principles for Data Sharing in the History of the Human Genome Project.Journal of the history of biology · 2018
   Article
10. A comparison of views regarding the use of de-identified data.Translational behavioral medicine · 2018
    Article
11. How Sensitive Is Genetic Data?Biopreservation and biobanking · 2017
    Article
12. Ethical sharing of health data in online platforms - which values should be considered?Life sciences, society and policy · 2017
    Article
13. Assessment of knowledge about biobanking among healthcare students and their willingness to donate biospecimens.BMC medical ethics · 2017
    Article
14. Power to the People: Data Citizens in the Age of Precision Medicine.Vanderbilt journal of entertainment and technology law · 2017
    Article
15. An overview of human genetic privacy.Annals of the New York Academy of Sciences · 2017
    Review
16. The dynamics of big data and human rights: the case of scientific research.Philosophical transactions. Series A, Mathematical, physical, and engineering sciences · 2016
    Article
17. Reconciling evidence-based medicine and precision medicine in the era of big data: challenges and opportunities.Genome medicine · 2016
    Review
18. Barbarians at the Gate: Consumer-Driven Health Data Commons and the Transformation of Citizen Science.American journal of law & medicine · 2016
    Article
19. Sharing health-related data: a privacy test?NPJ genomic medicine · 2016
    Article
20. Pulling the Strands Together: MEGA Steps to Drive European Genomics and Personalised Medicine.Biomedicine hub
    Review

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

Authors and funding

2 authors.

Funding

No grant is acknowledged in the PubMed record.

Abstract

PubMed holds no abstract for this paper.

Indexed as