ArticleFamilial cancer2016
Developing and assessing the utility of a You-Tube based clinical genetics video channel for families affected by inherited tumours.
Article in Familial cancer, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it, 16 citations in OpenAlex.
- Harnessing Digital Videos to Promote Cancer Prevention and Education: a Systematic Review of the Literature from 2013-2018.Journal of cancer education : the official journal of the American Association for Cancer Education · 2020Pooled it
- Attitudes, knowledge, and risk perceptions of patients who received elective genomic testing as a clinical service.Genetics in medicine : official journal of the American College of Medical Genetics · 2024Article
- The Development and Evaluation of an Educational Video for Breast Cancer Patients Requiring Adjuvant Radiation Therapy.Journal of cancer education : the official journal of the American Association for Cancer Education · 2024Article
- Preparing Patients to Communicate with Their Doctors About Clinical Trials as a Treatment Option: Impact of a Novel Video Intervention for Patients with a Blood Cancer and Their Caregivers.Journal of cancer education : the official journal of the American Association for Cancer Education · 2023Article
- The Impact of an Educational Video in Arabic Language on Patients' Knowledge and Attitudes Towards Genetic Testing for Cancer Therapy.Journal of cancer education : the official journal of the American Association for Cancer Education · 2023Article
- Use of Social Media to Promote Cancer Screening and Early Diagnosis: Scoping Review.Journal of medical Internet research · 2020Article
- The Impact of Genetic Counseling Educational Tools on Patients' Knowledge of Molecular Testing Terminology.Journal of cancer education : the official journal of the American Association for Cancer Education · 2020Article
- Free, online videos for distance learning in medical genetics.European journal of medical genetics · 2020Article
- User engagement with web-based genomics education videos and implications for designing scalable patient education materials.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2019Article
- Knowledge, experiences and attitudes concerning genetics among retinoblastoma survivors and parents.European journal of human genetics : EJHG · 2018Article
- Inclusion of diverse populations in genomic research and health services: Genomix workshop report.Journal of community genetics · 2017Article
- Development and Initial Assessment of a Patient Education Video about Pharmacogenetics.Journal of personalized medicine · 2017Article
- Evaluation of a pharmacogenetic educational toolkit for community pharmacists.Pharmacogenomics · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
We have designed and implemented the first worldwide You Tube channel with 22 videos covering common questions asked in familial cancer susceptibility clinics. We discuss the use of the videos including demographics of registered You Tube users, and what lessons have been learnt about how the general public uses medical information online. The most popular video on inheritance patterns has been watched on average 84 times per month. The mostly highly viewed videos include inheritance patterns, breast cancer screening and hereditary non-polyposis colorectal cancer. Registered viewers were more commonly male and the average age of the registered user was 45-54 years; similar to that seen in Genetics Clinics suggesting that age may not be a major barrier to access to this type of information for patients. The videos have been viewed in more than 140 countries confirming that there is clearly an audience for this type of information. Patient feedback questionnaires indicate that these videos provide a useful aide memoir for the clinic appointment, and most people would recommend them to others. In summary, You Tube videos are easy and cost effective to make. They have the ability to disseminate genetics education to a worldwide audience and may be a useful adjunct to clinical appointments.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.