ArticleAutism research : official journal of the International Society for Autism Research2016
Functioning and disability in autism spectrum disorder: A worldwide survey of experts.
Article in Autism research : official journal of the International Society for Autism Research, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 56 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
56 citing papers in PubMed, 115 citations in OpenAlex.
- The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention.Journal of autism and developmental disorders · 2018Trial
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- "They Showed Me How to Improve My Drawings and That Made Me Happy": A Realist Evaluation of a Digital Arts Multimedia Program for Autistic Adolescents.Journal of autism and developmental disorders · 2025Article
- Reliability, Validity and Acceptability of the PEDI-CAT with ASD Scales for Australian Children and Youth on the Autism Spectrum.Journal of autism and developmental disorders · 2025Article
- Improving Accessibility for Work Opportunities for Adults With Autism in an End-to-End Supported Workplace Program: Protocol for a Mixed Methods Cohort Study.JMIR research protocols · 2025Article
- The Validity and Reliability of the Turkish Version of the Autism Family Experience Questionnaire (AFEQ).Journal of autism and developmental disorders · 2025Article
- Application of the international classification of functioning, disability, and health in autism and attention-deficit hyperactivity disorder: A scoping review.Autism : the international journal of research and practice · 2025Article
- Breaking barriers, building futures: Inclusive workplaces for autistic people.Frontiers in psychiatry · 2025Article
- Factors associated with emotion regulation in young autistic children: a scoping review.International journal of developmental disabilities · 2025Article
- Vocational rehabilitation of adolescents and young adults with autism spectrum disorder: a review.International journal of developmental disabilities · 2025Review
- 'We are all bringing, like a unique sort of perspective': The core elements of a strengths-based digital arts mentoring program for autistic adolescents from the perspective of their mentors.Australian occupational therapy journal · 2024Article
- The Gestalt of functioning in autism revisited: First revision of the International Classification of Functioning, Disability and Health Core Sets.Autism : the international journal of research and practice · 2024Article
- Autistic adults' experiences of financial wellbeing: Part II.Autism : the international journal of research and practice · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
12 authors at 12 institutions in 10 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThis study is the second of four to prepare International Classification of Functioning, Disability and Health (ICF; and Children and Youth version, ICF(-CY)) Core Sets for Autism Spectrum Disorder (ASD).The objective of this study was to survey the opinions and experiences of international experts on functioning and disability in ASD.
methodsUsing a protocol stipulated by the World Health Organization (WHO) and monitored by the ICF Research Branch, an email-based questionnaire was circulated worldwide among ASD experts, and meaningful functional ability and disability concepts were extracted from their responses. These concepts were then linked to the ICF(-CY) by two independent researchers using a standardized linking procedure.
resultsN = 225 experts from 10 different disciplines and all six WHO-regions completed the survey. Meaningful concepts from the responses were linked to 210 ICF(-CY) categories. Of these, 103 categories were considered most relevant to ASD (i.e., identified by at least 5% of the experts), of which 37 were related to Activities and Participation, 35 to Body functions, 22 to Environmental factors, and 9 to Body structures. A variety of personal characteristics and ASD-related functioning skills were provided by experts, including honesty, loyalty, attention to detail and creative talents. Reported gender differences in ASD comprised more externalizing behaviors among males and more internalizing behaviors in females.
conclusionThe ICF(-CY) categories derived from international expert opinions indicate that the impact of ASD on functioning extends far beyond core symptom domains. Autism Res 2016, 9: 959-969. © 2016 The Authors Autism Research published by Wiley Periodicals, Inc. on behalf of International Society for Autism Research.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.