ArticleThe Clinical journal of pain2016
Characterizing the Pain Narratives of Parents of Youth With Chronic Pain.
Article in The Clinical journal of pain, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
18 citing papers in PubMed, 45 citations in OpenAlex.
- Feasibility and Acceptance Testing of a Mobile Application Providing Psychosocial Support for Parents of Children and Adolescents With Chronic Pain: Results of a Nonrandomized Trial.Journal of pediatric psychology · 2019Trial
- The Social Context of Pain in Youth With Cerebral Palsy: The Role of Caregiver Mental Health, Parenting Style and Protective Responses to Pain.Child: care, health and development · 2026Article
- Exploring the Capacity of Large Language Models to Assess the Chronic Pain Experience: Algorithm Development and Validation.Journal of medical Internet research · 2025Article
- The perception, understanding and experience of flourishing in young people living with chronic pain: A Q-methodology study.Journal of health psychology · 2024Article
- Chronic neck and low back pain from personal experiences: a written narrative approach.Pain management · 2024Article
- A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments.The Cochrane database of systematic reviews · 2023Review
- Chronic pain concepts of pediatricians: a qualitative survey.Pain reports · 2023Article
- Attaining expert consensus on diagnostic expectations of primary chronic pain diagnoses for patients referred to interdisciplinary pediatric chronic pain programs: A delphi study with pediatric chronic pain physicians and advanced practice nurses.Frontiers in pain research (Lausanne, Switzerland) · 2022Article
- Something Else Going On? Diagnostic Uncertainty in Children with Chronic Pain and Their Parents.Children (Basel, Switzerland) · 2020Article
- Children's physical pain: relations with maternal and paternal pain and prediction from maternal depressive symptoms and hope during infancy.Psychology, health & medicine · 2020Article
- Adolescent and Parent Experiences of Acceptance and Commitment Therapy for Pediatric Chronic Pain: An Interpretative Phenomenological Analysis.Children (Basel, Switzerland) · 2019Article
- The Role of Compassion and Mindfulness in Building Parental Resilience When Caring for Children With Chronic Conditions: A Conceptual Model.Frontiers in psychology · 2019Article
- Parents' experiences with pediatric chronic pain.Canadian journal of pain = Revue canadienne de la douleur · 2019Article
- Development and Usability Evaluation of an Art and Narrative-Based Knowledge Translation Tool for Parents With a Child With Pediatric Chronic Pain: Multi-Method Study.Journal of medical Internet research · 2017Article
- Connecting the Mind-Body Split: Understanding the Relationship between Symptoms and Emotional Well-Being in Chronic Pain and Functional Gastrointestinal Disorders.Healthcare (Basel, Switzerland) · 2017Review
- Mental Health Comorbidities in Pediatric Chronic Pain: A Narrative Review of Epidemiology, Models, Neurobiological Mechanisms and Treatment.Children (Basel, Switzerland) · 2016Review
- Circles of engagement: Childhood pain and parent brain.Neuroscience and biobehavioral reviews · 2016Review
- Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 2 countries.
Funding
Abstract
objectivesQuestionnaire-based research has shown that parents exert a powerful influence on and are profoundly influenced by living with a child with chronic pain. Examination of parents' pain narratives through an observational lens offers an alternative approach to understanding the complexity of pediatric chronic pain; however, the narratives of parents of youth with chronic pain have been largely overlooked. The present study aimed to characterize the vulnerability-based and resilience-based aspects of the pain narratives of parents of youth with chronic pain.
methodsPain narratives of 46 parents were recorded during the baseline session as part of 2 clinical trials evaluating a behavioral intervention for parents of youth with chronic pain. The narratives were coded for aspects of pain-related vulnerability and resilience.
resultsUsing exploratory cluster analysis, 2 styles of parents' pain narratives were identified. Distress narratives were characterized by more negative affect and an exclusively unresolved orientation toward the child's diagnosis of chronic pain, whereas resilience narratives were characterized by positive affect and a predominantly resolved orientation toward the child's diagnosis. Preliminary support for the validity of these clusters was provided through our finding of differences between clusters in parental pain catastrophizing about child pain (helplessness). DISCUSSION: Findings highlight the multidimensional nature of parents' experience of their child's pain problem. Clinical implications in terms of assessment and treatment are discussed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.