Evidence map›Paper›PMID 26728898›Full record

ArticleMaternal and child health journal2016

Disparities in Access to Easy-to-Use Services for Children with Special Health Care Needs.

Myra Rosen-Reynoso, Michelle V Porche, Ngai Kwan, Christina Bethell, Veronica Thomas, Julie Robertson, Eva Hawes, Susan Foley, Judith Palfrey

Abstract read
PubMed Publisher
In one paragraph

Article in Maternal and child health journal, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.

0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed
20.1field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

17 citing papers in PubMed, 45 citations in OpenAlex.

  1. Trial
  2. Trial
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Article
  17. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 6 institutions in 1 country.

Myra Rosen-ReynosoInstitute for Community Inclusion, University of Massachusetts, Boston, 100 Morrissey Blvd., Boston, MA, 02125, USA. myra.rosenreynoso@umb.edu.
Michelle V PorcheSchool of Education, Boston University, Two Silber Way, Boston, MA, 02215, USA.
Ngai KwanInstitute for Community Inclusion, University of Massachusetts, Boston, 100 Morrissey Blvd., Boston, MA, 02125, USA.
Christina BethellJohns Hopkins University, Baltimore, MD, USA.
Veronica ThomasInstitute for Community Inclusion, University of Massachusetts, Boston, 100 Morrissey Blvd., Boston, MA, 02125, USA.
Julie RobertsonOregon Health and Science University, Portland, OR, USA.
Eva HawesOregon Health and Science University, Portland, OR, USA.
Susan FoleyInstitute for Community Inclusion, University of Massachusetts, Boston, 100 Morrissey Blvd., Boston, MA, 02125, USA.
Judith PalfreyChildren's Hospital Boston, 300 Longwood Avenue, Boston, MA, 02115, USA.
Institute for Community Inclusion · USOregon Health & Science University · USUniversity of Massachusetts Boston · USBoston Children's Hospital · USBoston University · USJohns Hopkins University · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesFamilies, clinicians and policymakers desire improved delivery of health and related services for children with special health care needs (CSHCN). We analyzed factors associated with ease of use in obtaining such services. We also explored what were specific difficulties or delays in receiving services. By examining data from the National Survey of Children with Special Health Care Needs (NS-CSHCN 2009-2010) and using the revised criteria for "ease of use," we were able to assess the percentage of parents who reported that their experiences seeking services for their children met those criteria.

methodsWe performed Chi square tests to examine associations between the independent variables and their relationship to the difficulties or delays assessed in the survey; including: eligibility, availability of services, waiting lists, cost, and access to information. We used logistic regression to determine the association of meeting the "ease of use" criteria with socio-demographic, complexity of need, and access variables.

resultsOverall, a third of families of CSHCN (35.3 %) encounter difficulties, delays, or frustrations in obtaining health and related services. The lack of access to health and community services in this study fell most heavily on children from racial/ethnic minority backgrounds, those in poverty, and those with complex emotional/behavioral or developmental needs and functional limitations.

conclusionsfor Practice CSHCN require services from a broad array of providers across multiple systems. Unfortunately, there are certain difficulties that hamper the accessibility of these systems. These findings underscore the need for both practice-level response and systems-level reform to ensure equitable distribution of health and community resources.

Indexed as

AdolescentChildChild Health ServicesChild, PreschoolChildren with DisabilitiesEthnicityFemaleHealthcare DisparitiesHealth Care SurveysHealth Services AccessibilityHealth Services Needs and DemandHumansInfantMaleMinority GroupsParentsDisparitiesMedical homeSpecial-needs childrenSurvey

Identifiers

PMID26728898
OpenAlexW2224403894

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.