ArticleJournal of the American Medical Informatics Association : JAMIA2016
Development of a large urban longitudinal HIV clinical cohort using a web-based platform to merge electronically and manually abstracted data from disparate medical record systems: technical challenges and innovative solutions.
Article in Journal of the American Medical Informatics Association : JAMIA, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04998019 (Pragmatic Efficacy Trial of mHealth to Improve HIV Outcomes in the DC Cohort), which is not on this map. Cited by 63 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Pragmatic Efficacy Trial of mHealth to Improve HIV Outcomes in the DC Cohort
Who cites it
63 citing papers in PubMed.
- Clinical and HIV Surveillance Data to Determine Care Status for People With HIV in Washington, DC.Journal of acquired immune deficiency syndromes (1999) · 2026Article
- Comorbidities and treatment regimens of HIV-associated lipodystrophy disease among a cohort of persons with HIV in Washington, DC.AIDS care · 2026Article
- A Complex Digital Health Intervention to Support People With HIV: Organizational Readiness Survey Study and Preimplementation Planning for a Hybrid Effectiveness-Implementation Study.Journal of medical Internet research · 2026Article
- Exploring Intersectionality Among Latinos Living with HIV: A CHAID Analysis of Health Outcomes and Care Engagement.Journal of racial and ethnic health disparities · 2026Article
- Prevalence, incidence, and risk factors for dermatologic conditions in people with HIV in the modern antiretroviral era: A cohort study in Washington, DC.Journal of the American Academy of Dermatology · 2026Article
- Understanding the Impact of Antiretroviral Therapy and Other Factors on HPV Clearance in Cisgender Women With HIV/HPV Coinfections in the DC Cohort.Journal of acquired immune deficiency syndromes (1999) · 2025Article
- Using the ATra Black Box to Improve Public Health Data Linkages and Analytics in the DC Cohort Longitudinal HIV Study: Viewpoint on the Process and Findings.Journal of medical Internet research · 2025Article
- Integration of Patient Reported Outcomes Data among People with HIV in Washington, DC: A sub-cohort of the DC Cohort Longitudinal Study.Journal of public health (Berlin, Germany) · 2025Article
- EVALUATION OF SCREENING TOOL OF OLDER PEOPLE'S PRESCRIPTIONS (STOPP) CRITERIA IN AN URBAN COHORT OF OLDER PEOPLE WITH HIV.Pharmacoepidemiology · 2025Article
- Curating an HIV mHealth App for People Living with HIV in Washington, DC Through Think-Aloud Usability Testing and Beta Testing.AIDS and behavior · 2025Article
- Transient Viremia Among People with HIV Receiving Injectable Cabotegravir Plus Rilpivirine.AIDS research and human retroviruses · 2025Article
- Using multilevel modeling to assess the association between disruption in clinical services during the COVID-19 pandemic and loss of viral suppression among persons with HIV in Washington, DC.Discover public health · 2025Article
- Factors Associated with Time to Initial Antiretroviral Therapy Discontinuation in the DC Cohort.AIDS research and human retroviruses · 2024Observational
- Model Checking for Logistic Models with Study of Telehealth During the COVID-19 Pandemic Among PWH in DC.Statistics in biosciences · 2024Article
- Implementing a Biomedical Data Warehouse From Blueprint to Bedside in a Regional French University Hospital Setting: Unveiling Processes, Overcoming Challenges, and Extracting Clinical Insight.JMIR medical informatics · 2024Article
- Prevalence and risk factors for post-COVID conditions of COVID-19 among persons with HIV in Washington, DC.AIDS care · 2024Article
- Low Uptake of Long-Acting Injectables in the First 2.5 Years Following Approval Among a Cohort of People Living With HIV.Open forum infectious diseases · 2024Article
- Evaluation of New Hypertension Guidelines on the Prevalence and Control of Hypertension in a Clinical HIV Cohort: A Community-Based Study.AIDS research and human retroviruses · 2024Article
- Mixed Methods Analysis of Telehealth Experience, Satisfaction, and Quality of Care During the COVID Pandemic Among Persons with HIV in Washington, DC.AIDS and behavior · 2024Article
- A Latent Class Analysis of Substance Use and Longitudinal HIV RNA Patterns Among PWH in DC Cohort.AIDS and behavior · 2024Observational
3 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors.
Funding
Abstract
objectiveElectronic medical records (EMRs) are being increasingly utilized to conduct clinical and epidemiologic research in numerous fields. To monitor and improve care of HIV-infected patients in Washington, DC, one of the most severely affected urban areas in the United States, we developed a city-wide database across 13 clinical sites using electronic data abstraction and manual data entry from EMRs. MATERIALS AND
methodsTo develop this unique longitudinal cohort, a web-based electronic data capture system (Discovere®) was used. An Agile software development methodology was implemented across multiple EMR platforms. Clinical informatics staff worked with information technology specialists from each site to abstract data electronically from each respective site's EMR through an extract, transform, and load process.
resultsSince enrollment began in 2011, more than 7000 patients have been enrolled, with longitudinal clinical data available on all patients. Data sets are produced for scientific analyses on a quarterly basis, and benchmarking reports are generated semi-annually enabling each site to compare their participants' clinical status, treatments, and outcomes to the aggregated summaries from all other sites. DISCUSSION: Numerous technical challenges were identified and innovative solutions developed to ensure the successful implementation of the DC Cohort. Central to the success of this project was the broad collaboration established between government, academia, clinics, community, information technology staff, and the patients themselves.
conclusionsOur experiences may have practical implications for researchers who seek to merge data from diverse clinical databases, and are applicable to the study of health-related issues beyond HIV.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.