ArticleJournal of the American Medical Informatics Association : JAMIA2016
Patient-generated health data: a pathway to enhanced long-term cancer survivorship.
Article in Journal of the American Medical Informatics Association : JAMIA, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 34 citations in OpenAlex.
- Implementation and Evaluation of a Social Networking Service-Based Mobile Patient-Generated Health Data System With Direct Electronic Medical Record Integration: Prospective Observational Study.JMIR medical informatics · 2026Observational
- Patients' and healthcare providers' perceptions in outpatient palliative cancer care services at a tertiary care hospital in Sri Lanka: prospects for adoption of a digital health intervention.BMC health services research · 2026Article
- Application of Patient-Generated Health Data Among Older Adults With Cancer: Scoping Review.Journal of medical Internet research · 2025Article
- Using mHealth Technology to Evaluate Daily Symptom Burden among Adult Survivors of Childhood Cancer: A Feasibility Study.Cancers · 2024Article
- Exploring long-term breast cancer survivors' care trajectories using dynamic time warping-based unsupervised clustering.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Using an mHealth approach to collect patient-generated health data for predicting adverse health outcomes among adult survivors of childhood cancer.Frontiers in oncology · 2024Article
- Mobile Health Apps for Breast Cancer: Content Analysis and Quality Assessment.JMIR mHealth and uHealth · 2023Article
- Barriers to and Facilitators of Using a One Button Tracker and Web-Based Data Analytics Tool for Personal Science: Exploratory Study.JMIR formative research · 2022Article
- Article
- Patient generated health data and electronic health record integration in oncologic surgery: A call for artificial intelligence and machine learning.Journal of surgical oncology · 2021Review
- 'We are very individual': anticipated effects on stroke survivors of using their person-generated health data.BMJ health & care informatics · 2020Article
- Secondary care provider attitudes towards patient generated health data from smartwatches.NPJ digital medicine · 2020Article
- Measuring the outcomes of using person-generated health data: a case study of developing a PROM item bank.BMJ health & care informatics · 2019Article
- Through Patients' Eyes: Regulation, Technology, Privacy, and the Future.Yearbook of medical informatics · 2018Article
- Person-Generated Health Data in Simulated Rehabilitation Using Kinect for Stroke: Literature Review.JMIR rehabilitation and assistive technologies · 2018Review
- Taking Systems Medicine to Heart.Circulation research · 2018Review
- Accuracy of a Wrist-Worn Heart Rate Sensing Device during Elective Pediatric Surgical Procedures.Children (Basel, Switzerland) · 2018Article
- Personal discovery in diabetes self-management: Discovering cause and effect using self-monitoring data.Journal of biomedical informatics · 2017Observational
- Present and Future Trends in Consumer Health Informatics and Patient-Generated Health Data.Yearbook of medical informatics · 2017Review
- Integrating Patient-Generated Health Data Into Clinical Care Settings or Clinical Decision-Making: Lessons Learned From Project HealthDesign.JMIR human factors · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The growing ability to collect and transmit patient-generated health data, also referred to as people-generated health data and patient-reported outcomes, is creating an opportunity to greatly improve how cancer survivors and their providers manage survivors' health in the months and years following cancer treatment. Although cancer survivors are at higher risk of chronic health problems and early death as a result of cancer treatment, some experience difficulty identifying and receiving the care they need to optimize their health post-treatment. This article describes the challenges that cancer survivors and their providers face in managing survivors' care and identifies several ways that using patient-generated health data can improve survivors' and providers' ability to manage survivorship care at the individual and population levels.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.