ArticlePloS one2015
Emotional Health of People with Visual Impairment Caused by Retinitis Pigmentosa.
Article in PloS one, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Bilateral visual acuity decline in males with choroideremia: a pooled, cross-sectional meta-analysis.BMC ophthalmology · 2022Pooled it
- Eight Voices in Darkness: using art to involve the public in research dissemination.Research involvement and engagement · 2026Article
- Psychosocial observations in ocular genetics consultations: from genetic diagnosis to rehabilitation.International ophthalmology · 2025Article
- Incidence and Risk of Depressive Disorder in Patients With Retinitis Pigmentosa.JAMA ophthalmology · 2024Article
- Longitudinal analysis of health care costs in patients with childhood onset inherited retinal dystrophies compared to healthy controls.BMC ophthalmology · 2022Article
- Disability self-worth relates to lower anxiety and depression in people with visual impairment.Journal of clinical psychology · 2022Article
- US Health Resource Utilization and Cost Burden Associated with Choroideremia.Clinical ophthalmology (Auckland, N.Z.) · 2021Article
- The Burden of X-Linked Retinitis Pigmentosa on Patients and Society: A Narrative Literature Review.ClinicoEconomics and outcomes research : CEOR · 2021Review
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo understand the emotional difficulties associated with living with the ocular condition Retinitis Pigmentosa, and to examine the functioning of a self-report instrument used to assess this construct.
methodsThe difficulty of goals and tasks in the emotional health domain of the Dutch ICF Activity Inventory were rated by 166 people with Retinitis Pigmentosa in a cross-sectional study. Demographic factors were also assessed.
resultsResponses to the 23 emotional health tasks were Rasch analysed and could be used to form either one 20 item overview scale with some multidimensionality, or three unidimensional subscales addressing feelings (4 items), communicating visual loss (5 items) and fatigue (7 items). The most difficult individual tasks related to communicating visual loss to other people, and dealing with feelings such as frustration, anxiety and stress. The use of mobility aids and female gender were associated with increased difficulty with emotional health, explaining 19% of the variance in the overview scale.
conclusionsThe emotional health domain of the Dutch ICF Activity Inventory is a valid tool to assess emotional difficulties arising from visual loss. Interventions to aid people with Retinitis Pigmentosa deal with emotional difficulties should particularly address communicating vision loss effectively to others and coping with negative feelings.
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Registered trials
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