Evidence map›Paper›PMID 26711142›Full record

ArticleQualitative health research2016

Educating Parents About Pediatric Research: Children and Clinical Studies Website Qualitative Evaluation.

Lisa D Marceau, Lisa C Welch, Victoria L Pemberton, Gail D Pearson

Open access · greenAbstract read
In one paragraph

Article in Qualitative health research, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.6field-weighted citation impact, top 18% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 8 citations in OpenAlex.

  1. Trial
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 3 institutions in 1 country.

Lisa D MarceauNew England Research Institutes, Watertown, Massachusetts, USA LMarceau@neriscience.com.
Lisa C WelchTufts University, Boston, Massachusetts, USA.
Victoria L PembertonNational Institutes of Health, Bethesda, Maryland, USA.
Gail D PearsonNational Institutes of Health, Bethesda, Maryland, USA.
National Institutes of Health · USNew England Research Institutes · USTufts University · US

Funding

Ventricular Volumes and Varability (VVV)U01HL068270 · NHLBI · NEW ENGLAND RESEARCH INSTITUTES, INC. · PI SLEEPER, LYNN A · 2001 to 2010
$40.3M
NHLBI NIH HHS U01 HL068270
6 · The paper itself

Abstract

A gap in information about pediatric clinical trials exists, and parents remain uncertain about what is involved in research studies involving children. We aimed to understand parent perspectives about pediatric clinical research after viewing the online Children and Clinical Studies (CaCS) program. Using a qualitative descriptive study design, we conducted focus groups with parents and phone interviews with physicians. Three themes emerged providing approaches to improve parent's understanding of clinical research by including strategies where parents (a) hear from parents like themselves to learn about pediatric research, (b) receive general clinical research information to complement study-specific details, and (c) are provided more information about the role of healthy child volunteers. Parents found the website a valuable tool that would help them make a decision about what it means to participate in research. This tool can assist parents, providers, and researchers by connecting general information with study-specific information.

Indexed as

Clinical Trials as TopicParentsQualitative ResearchChildHealth Knowledge, Attitudes, PracticeHumansInternetPatient Education as TopicResearch Designchildreneducation, patienthealth information seekingNew England regionqualitative analysisresearch, qualitative methodstechnology, use in research

Identifiers

PMID26711142
PMCPMC5527330
OpenAlexW2285840314

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.