Evidence map›Paper›PMID 26702610›Full record

ArticleBMC psychiatry2015

'You are Okay': a support and educational program for children with mild intellectual disability and their parents with a mental illness: study protocol of a quasi-experimental design.

Ivon Riemersma, Floor van Santvoort, Jan M A M Janssens, Clemens M H Hosman, Karin T M van Doesum

Open access · goldAbstract read
In one paragraph

Article in BMC psychiatry, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact, top 85% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it, 9 citations in OpenAlex.

  1. Pooled it
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 2 institutions in 1 country.

Ivon RiemersmaPluryn Research & Development, Industrieweg 50, 6541TW, Nijmegen, The Netherlands. iriemersma@pluryn.nl.
Floor van SantvoortPluryn Research & Development, Industrieweg 50, 6541TW, Nijmegen, The Netherlands. fsantvoort@pluryn.nl.
Jan M A M JanssensBehavioural Science Institute, Department Developmental Psychopathology, Radboud University, Nijmegen, The Netherlands. j.janssens@pwo.ru.nl.
Clemens M H HosmanProfessor of mental health promotion and prevention, Maastricht University and Radboud University, Nijmegen, the Netherlands Hosman Prevention Consultancy & Innovation, Groesbeek, The Netherlands. hosman@psych.ru.nl.
Karin T M van DoesumRadboud University, Nijmegen, Behavioural Science Institute/Mindfit, Mental Health Center, Deventer, The Netherlands. karin.vandoesum@mindfit.nl.
Radboud University Nijmegen · NLPluryn · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundChildren of parents with a mental illness or substance use disorder (COPMI) have an increased risk of developing social-emotional problems themselves. Fear of stigmatisation or unawareness of problems prevents children and parents from understanding each other. Little is known about COPMI with mild intellectual disabilities (ID), except that they have a high risk of developing social-emotional problems and require additional support. In this study, we introduce a program for this group, the effectiveness of which we will study using a quasi-experimental design based on matching. The program 'You are okay' consists of a support group for children and an online educational program for parents. The goal of the program is to increase children and parents' perceived competence with an aim to prevent social-emotional problems in children. METHODS/

designChildren between ten and twenty years old with mild ID (IQ between 50 and 85) and at least one of their parents with a mental illness will be included in the study. The children will receive part time treatment or residential care from an institute for children with mild ID and behavioural problems. Participants will be assigned to the intervention or the control group. The study has a quasi-experimental design. The children in the intervention group will join a support group, and their parents will be offered an online educational program. Children in the control group will receive care as usual, and their parents will have no extra offer. Assessments will be conducted at baseline, post-test, and follow up (6 months). Children, parents, and social workers will fill out the questionnaires. DISCUSSION: The 'You are okay' program is expected to increase children and parents' perceived competence, which can prevent (further) social-emotional problem development. Because the mental illness of parents can be related to the behavioural problems of their children, it is important that children and parents understand each other. When talking about the mental illness of parents becomes standard in children's treatment, stigmatisation and the fear for stigmatisation can decrease.

trial registrationDutch Trial Register NTR4845 . Registered 9 October 2014.

Indexed as

Clinical ProtocolsAdolescentAdultChildEducation of Persons with Intellectual DisabilitiesFemaleHumansMaleMental DisordersNon-Randomized Controlled Trials as TopicParentsSelf-Help GroupsYoung Adult

Identifiers

PMID26702610
PMCPMC4690258
OpenAlexW2237016330

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.