Evidence map›Paper›PMID 26697270›Full record

ArticleJournal of adolescent and young adult oncology2015

Legacy Making Through Illness Blogs: Online Spaces for Young Adults Approaching the End-of-Life.

Jessica Keim-Malpass, Katharine Adelstein, Dio Kavalieratos

Open access · greenAbstract read
In one paragraph

Article in Journal of adolescent and young adult oncology, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
8.6field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 25 citations in OpenAlex.

  1. Article
  2. Avoir sa santé en main : le sentiment d'habilitation tel que perçu par les jeunes adultes souffrant d'un cancer avancé.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2020
    Article
  3. Taking control over our health: Empowerment as perceived by young adults living with advanced cancer.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2020
    Article
  4. Article
  5. Review
  6. End-of-Life Transitions and Hospice Utilization for Adolescents: Does Having a Usual Source of Care Matter?Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2017
    Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 2 institutions in 1 country.

Jessica Keim-MalpassDepartment of Acute and Specialty Care, University of Virginia School of Nursing , Charlottesville, Virginia.
Katharine AdelsteinDepartment of Acute and Specialty Care, University of Virginia School of Nursing , Charlottesville, Virginia.
Dio KavalieratosDepartment of Medicine, University of Pittsburgh School of Medicine , Division of General Internal Medicine, Pittsburgh, Pennsylvania.
University of Virginia · USUniversity of Pittsburgh · US

Funding

Patient-Centered Outcomes Research (PCOR) Scholars ProgramK12HS022989 · AHRQ · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI KAPOOR, WISHWA N · 2014 to 2018
$3.9M
Postdoctoral Training Program in Cancer SurvivorshipR25CA122061 · NCI · WAKE FOREST UNIVERSITY HEALTH SCIENCES · PI AVIS, NANCY E · 2008 to 2018
$3.8M
INTEGRATING PALLIATIVE CARE WITH DISEASE MANAGEMENT TO IMPROVE OUTCOMES AMONG PATIENTS WITH ADVANCED HEART FAILURE: INTERVENTIONAL RESEARCH CAREER DEVELOPMENTK01HL133466 · NHLBI · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI KAVALIERATOS, DIONYSIOS · 2016 to 2019
$527k
AHRQ HHS K12 HS022989AHRQ HHS K12HS022989NCATS NIH HHS L30 TR001226NCI NIH HHS IH5R25CA122061-05NHLBI NIH HHS K01 HL133466
6 · The paper itself

Abstract

Little is known about young adults with cancer at the end-of-life, but life review and legacy making may be important modalities to process the emotions associated with anticipatory grief. The study analyzed the illness blogs of five young women (aged 25-39 years) at the end-of-life using a narrative approach. Key elements of legacy making and grief processing were explored. The women had varying experiences before their death, but uniform posthumous occurrences with the use of the blog for a space of grief for loved ones. The use of online blogs among adolescents and young adults with advanced cancer is an area of needed further study.

Indexed as

Attitude to DeathBloggingNarrationAdultFemaleGriefHumansIllness BehaviorNeoplasmsend-of-lifeillness blogslegacy makingyoung adult oncology

Identifiers

PMID26697270
PMCPMC4684647
OpenAlexW1880877211

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.