Evidence map›Paper›PMID 26695067›Full record

ArticleZeitschrift fur Gerontologie und Geriatrie2017

[Stability of home based care arrangements for people with dementia : Development of a consensus definition of stability using expert focus groups].

Milena von Kutzleben, Kerstin Köhler, Jan Dreyer, Bernhard Holle, Martina Roes

Abstract readConsensus Statement
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In one paragraph

Article in Zeitschrift fur Gerontologie und Geriatrie, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Milena von KutzlebenArbeitsgruppe Versorgungsstrukturen, Deutsches Zentrum für Neurodegenerative Erkrankungen e. V. (DZNE), Stockumer Str. 12, 58453, Witten, Deutschland. Milena.vonKutzleben@dzne.de.
Kerstin KöhlerArbeitsgruppe Versorgungsstrukturen, Deutsches Zentrum für Neurodegenerative Erkrankungen e. V. (DZNE), Stockumer Str. 12, 58453, Witten, Deutschland.
Jan DreyerArbeitsgruppe Versorgungsstrukturen, Deutsches Zentrum für Neurodegenerative Erkrankungen e. V. (DZNE), Stockumer Str. 12, 58453, Witten, Deutschland.
Bernhard HolleArbeitsgruppe Versorgungsstrukturen, Deutsches Zentrum für Neurodegenerative Erkrankungen e. V. (DZNE), Stockumer Str. 12, 58453, Witten, Deutschland.
Martina RoesArbeitsgruppe Versorgungsstrukturen, Deutsches Zentrum für Neurodegenerative Erkrankungen e. V. (DZNE), Stockumer Str. 12, 58453, Witten, Deutschland.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe majority of people with dementia in Germany live at home. These informal care arrangements, which are mostly coordinated by informal carers, are the backbone of home-based dementia care. Creating and maintaining stability is an underlying theme in informal care; however, a definition of the complex phenomenon of 'stability' in this context is still lacking.

aimThe aim was to develop a working definition of stability of home-based care arrangements for people with dementia, which can be applied in current and future research projects at the German Center for Neurodegenerative Diseases in Witten (DZNE Witten) and others. MATERIAL AND

methodsEnsuing from prior research a preliminary version of the definition was formulated. This definition was discussed in a focus group of scientific experts with expertise in dementia research and care (n = 8). After data analysis using content analysis, the definition was revised during a scientific colloquium (n = 18) and a consensus was finally reached.

resultsThere were four major themes which were considered by the experts as being relevant for the definition of stability: (1) creating and maintaining stability as a continuous adaptation process, (2) a qualitative component of stability, (3) persons with dementia and informal carers as pivotal players and (4) transitions to residential care.

conclusionThe working definition introduced in this article reflects the authors' understanding of the phenomenon of stability of home-based care arrangements for people with dementia. In times of increasing need for evidence-based interventions it is necessary to develop elaborated definitions of complex phenomena in order to be able to systematically evaluate the efficacy of interventions on the basis of a common understanding.

Indexed as

Terminology as TopicAgedAged, 80 and overCaregiversDelivery of Health CareDementiaFemaleFocus GroupsGeriatric AssessmentGermanyHealth Services for the AgedHome Care ServicesHumansMaleAdaptationCare trajectoryConcept formationFamily caregiversInstitutionalization

Identifiers

PMID26695067

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.