ArticleJACC. Heart failure2015
Development of a Decision Aid for Patients With Advanced Heart Failure Considering a Destination Therapy Left Ventricular Assist Device.
Article in JACC. Heart failure, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06671353 (Randomized, Controlled Trial of a Video Decision Support for Advance Care Planning in Geriatric Patients With Frailty), which is not on this map. Cited by 28 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Randomized, Controlled Trial of a Video Decision Support for Advance Care Planning in Geriatric Patients With Frailty
Who cites it
28 citing papers in PubMed, 1 synthesis or guideline pooled it, 85 citations in OpenAlex.
- Decision aids for people facing health treatment or screening decisions.The Cochrane database of systematic reviews · 2024Pooled it
- Effectiveness of an Intervention Supporting Shared Decision Making for Destination Therapy Left Ventricular Assist Device: The DECIDE-LVAD Randomized Clinical Trial.JAMA internal medicine · 2018Trial
- Automatic Speed Modulation Based on Real-Time Cardiac Activity Monitoring for a Next-Generation LVAD.Annals of biomedical engineering · 2026Article
- Prevalence and Outcomes of Fears in Advanced Heart Failure: Differences Across Disease Stages.Current heart failure reports · 2025Review
- Article
- Hopes, expectations, and informational needs in patients undergoing advanced heart failure therapy evaluations.JHLT open · 2024Article
- Systematic Development of Patient Decision Aids: An Update from the IPDAS Collaboration.Medical decision making : an international journal of the Society for Medical Decision Making · 2021Article
- Article
- Shared Decision-Making for Left Ventricular Assist Devices: Rationale and Design of a Nationwide Dissemination and Implementation Project.Circulation. Cardiovascular quality and outcomes · 2021Article
- Article
- A multicenter trial of a shared DECision Support Intervention for Patients offered implantable Cardioverter-DEfibrillators: DECIDE-ICD rationale, design, Medicare changes, and pilot data.American heart journal · 2020Article
- Development of a patient decision aid for the management of superficial basal cell carcinoma (BCC) in adults with a limited life expectancy.BMC medical informatics and decision making · 2020Article
- Patient and Cardiologist Perspectives on Shared Decision Making in the Treatment of Older Adults Hospitalized for Acute Myocardial Infarction.Medical decision making : an international journal of the Society for Medical Decision Making · 2020Article
- Decision Aid Implementation among Left Ventricular Assist Device Programs Participating in the DECIDE-LVAD Stepped-Wedge Trial.Medical decision making : an international journal of the Society for Medical Decision Making · 2020Article
- 'Lock to Live': development of a firearm storage decision aid to enhance lethal means counselling and prevent suicide.Injury prevention : journal of the International Society for Child and Adolescent Injury Prevention · 2019Article
- Shared Decision Making in Cardiovascular Disease in the Outpatient Setting.JACC. Case reports · 2019Article
- Identifying Knowledge Gaps among LVAD Candidates.Journal of clinical medicine · 2019Article
- Therapeutic options in advanced heart failure.Clinical research in cardiology : official journal of the German Cardiac Society · 2018Article
- Outcomes Associated With Left Ventricular Assist Devices Among Recipients With and Without End-stage Renal Disease.JAMA internal medicine · 2018Article
- Integrating palliative care into routine care of patients with heart failure: models for clinical collaboration.Heart failure reviews · 2017Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
objectivesThis study aimed to create decision aids (DAs) for patients considering a destination therapy left ventricular assist device (DT LVAD).
backgroundInsertion of a DT LVAD is a major decision for patients with end-stage heart failure. Patients facing decisions with complex trade-offs may benefit from high-quality decision support resources.
methodsIn accordance with the International Patient Decision Aid Standards guidelines and based on a needs assessment with stakeholders, we developed drafts of paper and video DAs. With input from patients, caregivers, and clinicians through alpha testing, we iteratively modified the DAs to ensure acceptability.
resultsWe conducted semistructured interviews with 24 patients, 20 caregivers, and 24 clinicians to assess readability, bias, and usability of the DAs. Stakeholder feedback allowed us to integrate aspects critical to decision making around highly invasive therapies for life-threatening diseases, including addressing emotion and fear of death, using gain frames for all options that focus on living, highlighting palliative and hospice care, integrating the caregiver role, and using a range of balanced testimonials. After 19 iterative versions of the paper DA and 4 versions of the video DA, final materials were made available for wider use.
conclusionsWe developed the first International Patient Decision Aid Standards-level DAs for DT LVAD. Given the extreme nature of this medical decision, we augmented traditional DA characteristics with nontraditional DA features to address a spectrum of cognitive, automatic, and emotional aspects of end-of-life decision making. Not only are the DAs important tools for those confronting end-stage heart failure, but the lessons learned will likely inform decision support for other invasive therapies.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.