Observational studyHealth expectations : an international journal of public participation in health care and health policy2017
Challenges in shared decision making in advanced cancer care: a qualitative longitudinal observational and interview study.
Observational study in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 65 papers, 6 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
65 citing papers in PubMed, 6 syntheses or guidelines pooled it.
- Healthcare Professionals' Perceptions of Decision-Making for Older Patients with Cancer Receiving Systemic Therapy: A Systematic Review and Qualitative Evidence Synthesis.Annals of geriatric medicine and research · 2026Pooled it
- Ceiling of Care in Acute Care Settings: A Concept Analysis.Journal of nursing management · 2026Pooled it
- Barriers and facilitators to shared decision-making for patients with cancer and health care providers based on the COM-B model: a systematic review.BMC medical informatics and decision making · 2025Pooled it
- Shared decision-making in palliative cancer care: A systematic review and metasynthesis.Palliative medicine · 2024Pooled it
- Patients' preferred and perceived level of involvement in decision making for cancer treatment: A systematic review.Psycho-oncology · 2021Pooled it
- Availability and effectiveness of decision aids for supporting shared decision making in patients with advanced colorectal and lung cancer: Results from a systematic review.European journal of cancer care · 2019Pooled it
- Decision Coaching for Healthy Women With BRCA1/2 Pathogenic Variants—Findings of the Randomized Controlled EDCP-BRCA Trial.Deutsches Arzteblatt international · 2024Trial
- HELP - Heidelberg decision aid for lung cancer patients: a randomized controlled clinical trial.Trials · 2023Trial
- Decision aids for second-line palliative chemotherapy: a randomised phase II multicentre trial.BMC medical informatics and decision making · 2017Trial
- Empowering choices: insights from healthcare professionals on shared decision-making in kidney cancer.BJU international · 2026Article
- Beyond Lip Service: A Position Paper to Truly Stimulate Shared Decision-Making.Journal of advanced nursing · 2026Article
- Observational
- Shared Decision-Making with Palliative Care Specialist.Journal of hospice and palliative care · 2025Review
- Patients and healthcare professionals' perspectives on the implementation of shared decision making in multiple myeloma: a multinational qualitative study.BMC medical informatics and decision making · 2025Article
- Men's experiences of decision-making in life-prolonging treatments of metastatic castration-resistant prostate cancer - wishing for a process adapted to personal preferences: a prospective interview study.BMC medical informatics and decision making · 2025Article
- Real-world outcomes of metastatic cancer patients hospitalized at initial diagnosis: ONIRIS, a national study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Attributes Desired in a General Practitioner by Adults: Implications for Humanization in Medicine and Enhancement of the Patient Experience.Healthcare (Basel, Switzerland) · 2024Article
- Feasibility of implementing a decision aid for advanced cancer patients in a comprehensive cancer centers' outpatient setting: Valuable lessons learned.Cancer medicine · 2024Article
- Article
- A qualitative evaluation of factors influencing Tumor Treating fields (TTFields) therapy decision making among brain tumor patients and physicians.BMC cancer · 2024Article
5 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatients' preferences and expectations should be taken into account in treatment decision making in the last phase of life. Shared decision making (SDM) is regarded as a way to give the patient a central role in decision making. Little is known about how SDM is used in clinical practice in advanced cancer care.
objectiveTo examine whether and how the steps of SDM can be recognized in decision making about second- and third-line chemotherapy.
methodsFourteen advanced cancer patients were followed over time using face-to-face in-depth interviews and observations of the patients' out-clinic visits. Interviews and outpatient clinic visits in which treatment options were discussed or decisions made were transcribed verbatim and analysed using open coding.
resultsPatients were satisfied with the decision-making process, but the steps of SDM were barely seen in daily practice. The creation of awareness about available treatment options by physicians was limited and not discussed in an equal way. Patients' wishes and concerns were not explicitly assessed, which led to different expectations about improved survival from subsequent lines of chemotherapy.
conclusionTo reach SDM in daily practice, physicians should create awareness of all treatment options, including forgoing treatment, and communicate the risk of benefit and harm. Open and honest communication is needed in which patients' expectations and concerns are discussed. Through this, the difficult process of decision making in the last phase of life can be facilitated and the focus on the best care for the specific patient is strengthened.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.