Evidence map›Paper›PMID 26663624›Full record

ArticleArthritis care & research2016

Development and Validation of the Body Concealment Scale for Scleroderma.

Lisa R Jewett, Vanessa L Malcarne, Linda Kwakkenbos, Diana Harcourt, Nichola Rumsey, Annett Körner, Russell J Steele, Marie Hudson, Murray Baron, Jennifer A Haythornthwaite and 4 more

Abstract readValidation Study
In one paragraph

Article in Arthritis care & research, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Reliability and Validity of Self-Concealment Scale in Chinese Older Adults.Psychology research and behavior management · 2023
    Article
  2. Patient-reported outcome instruments in clinical trials of systemic sclerosis.Journal of scleroderma and related disorders · 2020
    Review
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Lisa R JewettMcGill University and the Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, Quebec, Canada.
Vanessa L MalcarneSan Diego State University and the University of California, San Diego.
Linda KwakkenbosMcGill University and the Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, Quebec, Canada.
Diana HarcourtCentre for Appearance Research, University of the West of England, Bristol, UK.
Nichola RumseyCentre for Appearance Research, University of the West of England, Bristol, UK.
Annett KörnerMcGill University and the Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, Quebec, Canada.
Russell J SteeleMcGill University and the Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, Quebec, Canada.
Marie HudsonMcGill University and the Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, Quebec, Canada.
Murray BaronMcGill University and the Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, Quebec, Canada.
Jennifer A HaythornthwaiteJohns Hopkins University School of Medicine, Baltimore, Maryland.
Leslie HeinbergBariatric and Metabolic Institute, Cleveland Clinic Lerner College of Medicine, Case Western Reserve University, Cleveland, Ohio.
Fredrick M WigleyJohns Hopkins University School of Medicine, Baltimore, Maryland.
Brett D ThombsMcGill University and the Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, Quebec, Canada.
Canadian Scleroderma Research Group

Funding

Center for Mind-Body ResearchR24AT004641 · NCCIH · JOHNS HOPKINS UNIVERSITY · PI HAYTHORNTHWAITE, JENNIFER A · 2007 to 2009
$2.9M
Center for Mind-Body ResearchR21NS048593 · NINDS · JOHNS HOPKINS UNIVERSITY · PI HAYTHORNTHWAITE, JENNIFER A · 2004 to 2006
$1.5M
PSYCHOSOCIAL INTERVENTIONS FOR SCLERODERMAR01AR047219 · NIAMS · JOHNS HOPKINS UNIVERSITY · PI HAYTHORNTHWAITE, JENNIFER A · 2000 to 2003
$1.3M
CIHR FRN 83518CIHR TR3-119192NCCIH NIH HHS R24 AT004641NIAMS NIH HHS R01 AR047219NINDS NIH HHS R21 NS048593
6 · The paper itself

Abstract

objectiveBody concealment is a component of social avoidance among people with visible differences from disfiguring conditions, including systemic sclerosis (SSc). The study objective was to develop a measure of body concealment related to avoidance behaviors in SSc.

methodsInitial items for the Body Concealment Scale for Scleroderma (BCSS) were selected using item analysis in a development sample of 93 American SSc patients. The factor structure of the BCSS was evaluated in 742 Canadian patients with single-factor, 2-factor, and bifactor confirmatory factor analysis models. Convergent and divergent validity were assessed by comparing the BCSS total score with the Brief-Satisfaction with Appearance Scale (Brief-SWAP) and measures of depressive symptoms and pain.

resultsA 2-factor model (Comparative Fit Index [CFI] 0.99, Tucker-Lewis Index [TLI] 0.98, Root Mean Square Error of Approximation [RMSEA] 0.08) fit substantially better than a 1-factor model (CFI 0.95, TLI 0.94, RMSEA 0.15) for the 9-item BCSS, but the Concealment with Clothing and Concealment of Hands factors were highly correlated (α = 0.79). The bifactor model (CFI 0.99, TLI 0.99, RMSEA 0.08) also fit well. In the bifactor model, the omega coefficient was high for the general factor (ω = 0.80), but low for the Concealment with Clothing (ω = 0.01) and Concealment of Hands (ω = 0.33) factors. The BCSS total score correlated more strongly with the Brief-SWAP Social Discomfort (r = 0.59) and Dissatisfaction with Appearance (r = 0.53) subscales than with measures of depressive symptoms and pain.

conclusionThe BCSS sum score is a valid indicator of body concealment in SSc that extends the concepts of body concealment and avoidance beyond the realms of body shape and weight to concerns of individuals with visible differences from SSc.

Indexed as

Social BehaviorSurveys and QuestionnairesAdultAgedBody ImageFemaleHumansMaleMiddle AgedPsychometricsScleroderma, Systemic

Identifiers

PMID26663624
PMCPMC5517295

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.