ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2016
Validation of the EORTC QLQ-INFO 25 questionnaire in Lebanese cancer patients: Is ignorance a Bliss?
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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7 citing papers in PubMed, 16 citations in OpenAlex.
- Validation of the Sinhala Translation of the EORTC QLQ-INFO25: Enhancing Information Provision for Cancer Patients in Sri Lanka.Journal of cancer education : the official journal of the American Association for Cancer Education · 2025Article
- Nutritional Status and Information Provided to Polish Cancer Patients Assessed Using the EORTC QLQ-INFO25 Questionnaire.Journal of clinical medicine · 2025Article
- Health-related quality of life in hemato-oncology patients: role of informativeness and doctor-patient communication.Health psychology research · 2024Article
- Cancer patient satisfaction regarding the quality of information received: psychometric validity of EORTC QLQ-INFO25.Revista brasileira de enfermagem · 2024Article
- Comprehensive review into the challenges of gastrointestinal tumors in the Gulf and Levant countries.World journal of clinical cases · 2020Review
- Factors associated with the time to first palliative care consultation in Lebanese cancer patients.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Article
- The role of palliative care in the last month of life in elderly cancer patients.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2017Article
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Authors and funding
12 authors at 3 institutions in 2 countries.
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No grant is acknowledged in the PubMed record.
Abstract
introductionDespite worldwide trends toward optimizing full disclosure of information (DOI), the prevailing belief that cancer diagnosis should be concealed from patients, for their own good, has endured for a substantial period of time in Middle Eastern communities.
objectivesThis study would assess the reliability of the Arabic translated version of the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-INFO 25). The study was also designed to quantify DOI to Lebanese cancer patients and determine patient satisfaction with this DOI. Moreover, we compared the differences in the level of information among groups based on clinical and biographical variables.
methodsA sample of patients, being treated for a variety of malignancies, was prospectively evaluated. A physician interviewed patients using the Arabic version of the EORTC QLQ-INFO 25, on the day of hospitalization for chemotherapy, before treatment was administered.
resultsIn total 201 patients were interviewed. The translated version of the EORTC QLQ-INFO 25 showed high reliability when assessed using Cronbach's alpha coefficients for internal consistency with values scoring higher than 0.7 for all scales and the full questionnaire. There was a considerable lack of information provided to the participants with 38.8 % being unaware of their diagnosis and more than half being uninformed about the extent of their disease. Paradoxically, 86.5 % of patients expressed their satisfaction about the amount of information they received and 89.5 % believe the information provided was helpful. Further analysis showed no significant association between gender, marital status, cancer site and stage and the amount of information received. However, age and level of education were associated with DOI such as younger and more educated patients received more information. Older patients were also found to be the most satisfied with the information they received, despite having less access to information.
conclusionsAlthough a high proportion of patients were not properly informed about their diagnosis, the overwhelming majority were satisfied with the amount of information they received and believed it was useful, reflecting the complexity of Middle Eastern cultural influences on cancer patients' perspectives.
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