Evidence map›Paper›PMID 26654059›Full record

ArticleJournal of social work in end-of-life & palliative care2015

Missed Opportunity: Hospice Care and the Family.

Jennifer Tabler, Rebecca L Utz, Lee Ellington, Maija Reblin, Michael Caserta, Margaret Clayton, Dale Lund

Abstract read
In one paragraph

Article in Journal of social work in end-of-life & palliative care, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Article
  4. Review
  5. Article
  6. Article
  7. Article
  8. Effectiveness of palliative care consultation service on caregiver burden over time between terminally ill cancer and non-cancer family caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020
    Article
  9. Article
  10. Observational
  11. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Jennifer Tablera Department of Sociology , University of Utah , Salt Lake City , Utah , USA.
Rebecca L Utza Department of Sociology , University of Utah , Salt Lake City , Utah , USA.
Lee Ellingtonb College of Nursing , University of Utah , Salt Lake City , Utah , USA.
Maija Reblinc Department of Health Outcomes & Behavior , Moffitt Cancer Center , Tampa , Florida , USA.
Michael Casertab College of Nursing , University of Utah , Salt Lake City , Utah , USA.
Margaret Claytonb College of Nursing , University of Utah , Salt Lake City , Utah , USA.
Dale Lundd Department of Sociology , California State University San Bernardino , San Bernardino , California , USA.

Funding

Symptom Care by Phone for Hospice Caregiver Support and Cancer Symptom ReliefP01CA138317 · NCI · UNIVERSITY OF UTAH · PI MOONEY, KATHLEEN H · 2010 to 2015
$7.0M
NCI NIH HHS P01 CA138317NCI NIH HHS P01CA138317
6 · The paper itself

Abstract

A typical mission statement of hospice services is to provide quality, compassionate care to those with terminal illness and to support families through caregiving and bereavement. This study explored the ways that bereavement needs of caregivers, either predeath or postdeath of their spouse/partner, were addressed using qualitative retrospective phone interviews with 19 caregivers whose spouse/partner was enrolled in hospice care for cancer. Overall, participants expressed high satisfaction with hospice care, most often noting a high satisfaction with the quality of care provided to their spouse/partner. During the predeath phase, caregivers recalled being so focused on their spouse/partner's needs that they rarely spoke with hospice staff about their own personal needs and emotions. Participants said that bereavement counseling occurred primarily after the death of the spouse/partner, in the form of generic pamphlets or phone calls from someone they had not met during prior interactions with hospice staff. These findings suggest that caregivers' high satisfaction with hospice may be more associated with the quality of care provided to the spouse/partner than with bereavement support they received. Our findings illustrated a potential missed opportunity for hospices to address the family-oriented goals that are commonly put forward in hospice mission statements.

Indexed as

BereavementAgedCaregiversFemaleGriefHospice CareHumansMaleMiddle AgedNeoplasmsPatient SatisfactionQualitative ResearchRetrospective StudiesSocial WorkSpousesbereavementcaregiversfamily caregiversgrief/losshospice

Identifiers

PMID26654059
PMCPMC4741375

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.