ReviewClinical epidemiology2015
Ethical aspects of registry-based research in the Nordic countries.
Review in Clinical epidemiology, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 196 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
196 citing papers in PubMed, 1 synthesis or guideline pooled it.
- SARS-CoV-2 Vaccination and Myocarditis in a Nordic Cohort Study of 23 Million Residents.JAMA cardiology · 2022Pooled it
- Variation in fecal hemoglobin concentrations: Cross-sectional analysis of a screening trial and a screening program in Sweden.Journal of medical screening · 2026Trial
- Platelet P2Y12 inhibitor use and risk of colorectal cancer incidence and colorectal cancer-related mortality: a Swedish registry-based cohort study.BMC gastroenterology · 2026Article
- Human papillomavirus infection and risk of cardiovascular disease: A population-based matched cohort study with sibling analysis.PLoS medicine · 2026Article
- Comorbidity-adjusted life expectancy using comprehensive summary measures of medical history: nationwide, population-based study in Sweden.European journal of epidemiology · 2026Article
- Ten-year antidepressant medication trajectories among people who exit paid work when aged 66-76 years: a population-based cohort study.Social psychiatry and psychiatric epidemiology · 2026Article
- Socioeconomic Status and Survival in Sarcomas of the Breast: Nationwide Cohort Study.Annals of surgical oncology · 2026Article
- Incidence and prevalence of autoimmune disease in the Swedish National Patient Register.European journal of epidemiology · 2026Article
- Depression and Crime Across Different Neighborhoods in the Swedish General Population.JAMA network open · 2026Article
- Trends in Congenital Heart Disease Hospitalizations: What Nearly 50 Years of Longitudinal Data and Segmented Regression Reveal.Journal of the American Heart Association · 2026Article
- Identifying diseases in claims data using a machine learning approach - a case from Switzerland.Archives of public health = Archives belges de sante publique · 2025Article
- Older health and social care workers' labour market patterns: a 16-year longitudinal study from ages 61-65 to 76-80.BMC health services research · 2025Article
- Occupational prestige and future sickness absence and disability pension in women and men: a Swedish nationwide prospective cohort study.Scandinavian journal of public health · 2025Article
- Patient Characteristics Associated With Outcomes After General Anaesthesia in Denmark: A Nationwide Observational Study.Acta anaesthesiologica Scandinavica · 2025Observational
- Cholecystectomy Is a Risk Factor for Microscopic Colitis: A Nationwide Population-based Matched Case Control Study.Clinical gastroenterology and hepatology : the official clinical practice journal of the American Gastroenterological Association · 2025Article
- Article
- Risk of primary sclerosing cholangitis among patients with gastritis: a nationwide cohort study.European journal of epidemiology · 2025Article
- Time until exit from paid work after ages 65-69 and ≥ 70, respectively: importance of prior sickness absence and disability pension.BMC public health · 2025Article
- Overstated association between adolescent physical fitness and adulthood depression risk due to familial factors.Journal of internal medicine · 2025Article
- Youth Uptake of Digital Sexual and Reproductive Health Services Across Sociodemographic Groups (2018-2022): A Total Population Study from Stockholm, Sweden.Mayo Clinic proceedings. Digital health · 2025Article
136 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
National health care registries in the Nordic countries share many attributes, but different legal and ethical frameworks represent a challenge to promoting effective joint research. Internationally, there is a lack of knowledge about how ethical matters are considered in Nordic registry-based research, and a lack of knowledge about how Nordic ethics committees operate and what is needed to obtain an approval. In this paper, we review ethical aspects of registry-based research, the legal framework, the role of ethics review boards in the Nordic countries, and the structure of the ethics application. We discuss the role of informed consent in registry-based research and how to safeguard the integrity of study participants, including vulnerable subjects and children. Our review also provides information on the different government agencies that contribute registry-based data, and a list of the major health registries in Denmark, Finland, Iceland, Norway, and Sweden. Both ethical values and conditions for registry-based research are similar in the Nordic countries. While Denmark, Finland, Iceland, Norway, and Sweden have chosen different legal frameworks, these differences can be resolved through mutual recognition of ethical applications and by harmonizing the different systems, likely leading to increased collaboration and enlarged studies.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.