ArticlePsycho-oncology2017
Idiographic quality of life assessment before radical cystectomy.
Article in Psycho-oncology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03410667 (A Patient-centered Approach to Urinary Incontinence and Quality of Life in Children and Adolescents With Spina Bifida), which is not on this map. Cited by 6 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
A Patient-centered Approach to Urinary Incontinence and Quality of Life in Children and Adolescents With Spina Bifida
Who cites it
6 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The current use of the EORTC QLQ-NMIBC24 and QLQ-BLM30 questionnaires for the assessment of health-related quality of life in bladder cancer patients: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Pooled it
- A patient- and parent-centered approach to urinary and fecal incontinence in children and adolescents with spina bifida: understanding experiences in the context of other competing care issues.Journal of pediatric urology · 2023Article
- Predicting global QoL after orthotopic neobladder or ileal conduit diversion: nomogram development.Frontiers in oncology · 2023Article
- A philosophical perspective on the development and application of patient-reported outcomes measures (PROMs).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Capturing patient experience: does quality-of-life appraisal entail a new class of measurement?Journal of patient-reported outcomes · 2020Article
- Perceptions of Response Burden Associated with Completion of Patient-Reported Outcome Assessments in Oncology.Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research · 2019Article
Corrections and comments
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Authors and funding
10 authors.
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Abstract
backgroundWe sought to determine if idiographic, or self-defined, measures added to our understanding of patients with bladder cancer's quality of life (QOL) prior to radical cystectomy (RC). We tested whether idiographic measures increased prediction of global QOL beyond standard (nomothetic) measures of QOL components.
methodsWe administered the European Organization for Research and Treatment of Cancer Quality of Life Questionnaires (QLQ)-C30 and QLQ-BLM30, and our own idiographic Quality of Life Appraisal Profile prior to RC. Idiographic measures included number of goal statements, distance from goal attainment, and ability to complete goal attainment activities. Multivariate linear regression was used to predict measures of global QOL and related constructs of life satisfaction and mental health.
resultsTwo hundred fiftheen patients reported a median of 8 (interquartile range [IQR] 6, 11) goals and half had an average goal attainment rating above 6.9 out of 10 (IQR 5.5, 8.2). On multivariable analysis, QLQ-C30 role functioning and QLQ-BLM30 future perspective explained 15.7% of the variability in preoperative global QOL. Including goal attainment and activity difficulty explained an additional 12% of global QOL variance. Smaller gains were seen on measures of global health, life satisfaction, mental health, and activity, suggesting that idiographic measures capture aspects of QOL distinct from health and functional status defined by nomothetic scales.
conclusionsIdiographic assessment of QOL added to prediction of global QOL above and beyond health-related components measured using nomothetic instruments. This self-defined information may be valuable in communicating with cancer patients about their QOL. Copyright © 2015 John Wiley & Sons, Ltd.
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