ArticlePediatric rheumatology online journal2015
Barriers and facilitators for mental healthcare in pediatric lupus and mixed connective tissue disease: a qualitative study of youth and parent perspectives.
Article in Pediatric rheumatology online journal, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 2 syntheses or guidelines pooled it, 30 citations in OpenAlex.
- American College of Rheumatology Guidance Statements for Addressing Mental Health Concerns in Youth With Pediatric Rheumatologic Diseases.Arthritis care & research · 2025Guideline
- Pooled it
- Mental health needs of children and young people with arthritis.Arthritis research & therapy · 2026Review
- Using a Mental Health Care Navigator to Overcome Barriers to Care in Childhood-Onset Systemic Lupus Erythematosus.ACR open rheumatology · 2025Article
- Support needs and non-pharmacological interventions for adults with mixed connective tissue disease: a systematic literature review.EULAR rheumatology open · 2025Review
- Psychometric properties of patient-reported outcomes measurement information system (PROMIS) fixed short forms in Juvenile Myositis.Seminars in arthritis and rheumatism · 2025Article
- Improving routine mental health screening for depression and anxiety in a paediatric lupus clinic: a quality improvement initiative for enhanced mental healthcare.Lupus science & medicine · 2024Article
- A multi-site pilot randomized clinical trial of the Treatment and Education Approach for Childhood-onset Lupus (TEACH) program: study design and COVID-19 adaptations.Pediatric rheumatology online journal · 2023Article
- Health Literacy and Patient Activation in the Pediatric to Adult Transition in Systemic Lupus Erythematosus: Patient and Health Care Team Perspectives.ACR open rheumatology · 2022Article
- Mental Health Care Use and Associated Factors in Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study.ACR open rheumatology · 2022Article
- Diagnostic Delays and Psychosocial Outcomes of Childhood-Onset Systemic Lupus Erythematosus.Cureus · 2022Review
- Targeted provider education and pre-visit planning increase rates of formal depression screening in childhood-onset SLE.Pediatric rheumatology online journal · 2021Article
- Engaging patients and parents to improve mental health intervention for youth with rheumatological disease.Pediatric rheumatology online journal · 2021Article
- Parent Perspectives on Addressing Emotional Health for Children and Young Adults With Juvenile Myositis.Arthritis care & research · 2021Article
- Young Minds: Mental Health and Transitional Care in Adolescent and Young Adult Rheumatology.Open access rheumatology : research and reviews · 2020Review
- Mental health care for youth with rheumatologic diseases - bridging the gap.Pediatric rheumatology online journal · 2017Review
- Implementation of Depression Screening and Global Health Assessment in Pediatric Subspecialty Clinics.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundUntreated mental health problems may result in poor outcomes for youth with systemic lupus erythematosus (SLE) and mixed connective tissue disease (MCTD). We investigated perceptions, barriers and facilitators for mental healthcare of these youth.
methodsWe conducted 32 semi-structured interviews with 16 outpatient youth with SLE/MCTD, ages 11-22 years, and their parents. We used purposive sampling to deliberately obtain the experiences of youth screened during a previous study for depression and anxiety with the Patient Health Questionnaire 9 and the Screen for Childhood Anxiety and Related Disorders, respectively. We recruited 6 youth with previous positive screens and 10 with negative screens. We assessed interim mental health history, and qualitatively examined perceptions, barriers and facilitators for mental healthcare.
resultsYouth with a mental health history increased from 6 (38%) at initial screening to 9 (56%) at interview (mean follow-up = 2.1 years). Youth receiving mental health treatment increased from 33 to 67%. Youth and parents identified rheumatologists as primary physicians and found mental health screening in rheumatology acceptable. Barriers to mental healthcare included: stigma; fear; uncertainty about getting help; parental emotional burden; minimization by doctors; and limited mental healthcare access. Facilitators included: strong clinician relationships; clinician initiative, sincerity and normalization in discussing mental health; and increased patient/family awareness of mental health issues in SLE/MCTD.
conclusionYouth with SLE/MCTD and their parents perceive pediatric rheumatologists as a preferred source for mental health screening, guidance and referral. Interventions addressing barriers and enhancing facilitators may improve mental healthcare for youth with SLE/MCTD.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.