Observational studyHealth communication2016
Addressing Methodological Challenges in Large Communication Data Sets: Collecting and Coding Longitudinal Interactions in Home Hospice Cancer Care.
Observational study in Health communication, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed.
- Stakeholder-engaged process for refining the design of a clinical trial in home hospice.BMC medical research methodology · 2021Trial
- Telehealth for the study of palliative care communication: opportunities, methodological challenges, and recommendations.BMC palliative care · 2025Article
- "How's your mood": Recorded physician mental health conversations with Chinese and Latino patients in routine primary care visits.Patient education and counseling · 2023Article
- The lump-versus-split dilemma in couple observational coding: A multisite analysis of rapid marital interaction coding system data.Journal of family psychology : JFP : journal of the Division of Family Psychology of the American Psychological Association (Division 43) · 2021Article
- Behind the doors of home hospice patients: A secondary qualitative analysis of hospice nurse communication with patients and families.Palliative & supportive care · 2019Article
- Addressing cancer patient and caregiver role transitions during home hospice nursing care.Palliative & supportive care · 2019Article
- Hospice nurse identification of comfortable and difficult discussion topics: Associations among self-perceived communication effectiveness, nursing stress, life events, and burnout.Patient education and counseling · 2019Article
- Using Social Network Analysis to Investigate Positive EOL Communication.Journal of pain and symptom management · 2018Article
- Positive emotion communication: Fostering well-being at end of life.Patient education and counseling · 2018Observational
- Shared Decision Making in Home Hospice Nursing Visits: A Qualitative Study.Journal of pain and symptom management · 2018Article
- Caregiver, patient, and nurse visit communication patterns in cancer home hospice.Psycho-oncology · 2017Article
- Missed Opportunity: Hospice Care and the Family.Journal of social work in end-of-life & palliative care · 2015Article
- Measuring Communication Similarity Between Hospice Nurses and Cancer Caregivers Using Latent Semantic Analysis.Cancer nursingArticle
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
In this article, we present strategies for collecting and coding a large longitudinal communication data set collected across multiple sites, consisting of more than 2000 hours of digital audio recordings from approximately 300 families. We describe our methods within the context of implementing a large-scale study of communication during cancer home hospice nurse visits, but this procedure could be adapted to communication data sets across a wide variety of settings. This research is the first study designed to capture home hospice nurse-caregiver communication, a highly understudied location and type of communication event. We present a detailed example protocol encompassing data collection in the home environment, large-scale, multisite secure data management, the development of theoretically-based communication coding, and strategies for preventing coder drift and ensuring reliability of analyses. Although each of these challenges has the potential to undermine the utility of the data, reliability between coders is often the only issue consistently reported and addressed in the literature. Overall, our approach demonstrates rigor and provides a "how-to" example for managing large, digitally recorded data sets from collection through analysis. These strategies can inform other large-scale health communication research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.