Evidence map›Paper›PMID 26567856›Full record

ArticleOrthodontics & craniofacial research2015

Centralization of cleft care in the UK. Part 6: a tale of two studies.

A R Ness, A K Wills, A Waylen, R Al-Ghatam, T E M Jones, R Preston, A J Ireland, M Persson, J Smallridge, A J Hall and 2 more

Abstract read
In one paragraph

Article in Orthodontics & craniofacial research, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Systematic Review of Clinical Practice Guidelines for Oral Health in Children With Cleft Lip and Palate.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2022
    Pooled it
  2. Comparison of Goslon Yardstick and Cephalometric Analysis in Nonsyndromic Unilateral Cleft lip and Palate Individuals in the Western Cape, South Africa.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026
    Article
  3. Burden of Travel is not Associated with Adherence to Follow-up Appointments - A Call for Centralization of Cleft Care in Germany.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026
    Article
  4. Exploring the Needs of Young People Born With Cleft Lip and/or Palate Approaching End of Routine Care, in the UK.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026
    Article
  5. Hospital-based Costs to the National Health Service (UK) for Children and Adolescents Born with Cleft from Birth to 20 Years.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2025
    Article
  6. Article
  7. Where is the Care? Identifying the Impact of Rurality on SLP Caseloads and Treatment Decisions for Children with Cleft Palate.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2024
    Article
  8. Prevalence and Factors Associated with Behavioral Problems in 5-Year-Old Children Born with Cleft Lip and/or Palate from the Cleft Collective.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2024
    Observational
  9. Article
  10. The Impact of the Covid-19 Pandemic on Cleft Lip and Palate Service Delivery for New Families in the United Kingdom: Medical and Community Service Provider Perspectives.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2023
    Article
  11. Isolation, Uncertainty and Treatment Delays: Parents' Experiences of Having a Baby with Cleft Lip/Palate During the Covid-19 Pandemic.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2023
    Article
  12. Current Treatment of Cleft Patients in Europe from a Provider Perspective: A Cross-Sectional Survey.International journal of environmental research and public health · 2022
    Article
  13. Facilitators and Barriers to Implementing Standardized Outcome Measurement for Children With Cleft Lip and Palate.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2021
    Article
  14. Article
  15. Article
  16. Defining the Aesthetic Range of Normal Symmetry for Lip and Nose Features in 5-Year-Old Children Using the Computer-Based Program SymNose.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2019
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

A R NessNational Institute for Health Research (NIHR) Biomedical Research Unit in Nutrition, Diet and Lifestyle at the University Hospitals Bristol NHS Foundation Trust and the University of Bristol, Bristol, UK.
A K WillsSchool of Oral and Dental Sciences, University of Bristol, Bristol, UK.
A WaylenSchool of Oral and Dental Sciences, University of Bristol, Bristol, UK.
R Al-GhatamSchool of Oral and Dental Sciences, University of Bristol, Bristol, UK.
T E M JonesSchool of Oral and Dental Sciences, University of Bristol, Bristol, UK.
R PrestonCleft Lip and Palate Association, London, UK.
A J IrelandSchool of Oral and Dental Sciences, University of Bristol, Bristol, UK.
M PerssonCentre for Appearance Research, University of the West of England, Bristol, UK.
J SmallridgeSouth Thames' Cleft Unit, Guy's and St Thomas Hospital, London, UK.
A J HallChildren's Hearing Centre, University Hospitals Bristol NHS Foundation Trust, Bristol, UK.
D SellSpeech and Language Therapy Department and Centre for Outcomes and Experience Research in Children's Health, Illness and Disability (ORCHID), Great Ormond Street Hospital NHS Foundation Trust, London, UK.
J R SandySchool of Oral and Dental Sciences, University of Bristol, Bristol, UK.

Funding

Department of Health RP-PG-0707-10034
6 · The paper itself

Abstract

objectivesWe summarize and critique the methodology and outcomes from a substantial study which has investigated the impact of reconfigured cleft care in the United Kingdom (UK) 15 years after the UK government started to implement the centralization of cleft care in response to an earlier survey in 1998, the Clinical Standards Advisory Group (CSAG). SETTING AND SAMPLE POPULATION: A UK multicentre cross-sectional study of 5-year-olds born with non-syndromic unilateral cleft lip and palate. Data were collected from children born in the UK with a unilateral cleft lip and palate between 1 April 2005 and 31 March 2007. MATERIALS AND

methodsWe discuss and contextualize the outcomes from speech recordings, hearing, photographs, models, oral health and psychosocial factors in the current study. We refer to the earlier survey and other relevant studies.

resultsWe present arguments for centralization of cleft care in healthcare systems, and we evidence this with improvements seen over a period of 15 years in the UK. We also make recommendations on how future audit and research may configure.

conclusionsOutcomes for children with a unilateral cleft lip and palate have improved after the introduction of a centralized multidisciplinary service, and other countries may benefit from this model. Predictors of early outcomes are still needed, and repeated cross-sectional studies, larger longitudinal studies and adequately powered trials are required to create a research-led evidence-based (centralized) service.

Indexed as

Delivery of Health CareChild, PreschoolCleft LipCleft PalateCross-Sectional StudiesFemaleHumansMaleSpeechUnited KingdomCleft LipCleft PalateCross-Sectional Studies

Identifiers

PMID26567856
PMCPMC4670710

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.