Evidence map›Paper›PMID 26563948›Full record

ArticleJournal of autism and developmental disorders2016

Strategies for Disseminating Information on Biomedical Research on Autism to Hispanic Parents.

Clara M Lajonchere, Barbara Y Wheeler, Thomas W Valente, Cary Kreutzer, Aron Munson, Shrikanth Narayanan, Abe Kazemzadeh, Roxana Cruz, Irene Martinez, Sheree M Schrager and 3 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of autism and developmental disorders, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Article
  5. Article
  6. Engaging Study Participants in Research Dissemination at a Center for Population Health and Health Disparities.Progress in community health partnerships : research, education, and action
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Clara M LajonchereUniversity of Southern California Viterbi School of Engineering, 3740 McClintock Ave., Los Angeles, CA, 90089-2564, USA.
Barbara Y WheelerUSC University Center for Excellence in Developmental Disabilities at Children's Hospital Los Angeles, MS 53, 4650 Sunset Blvd., Los Angeles, CA, 90027, USA. bwheeler@chla.usc.edu.
Thomas W ValenteDepartment of Preventive Medicine, University of Southern California Keck School of Medicine, 2001 N. Soto St, Room 302 W, Los Angeles, CA, 90032-3628, USA.
Cary KreutzerUSC University Center for Excellence in Developmental Disabilities at Children's Hospital Los Angeles, MS 53, 4650 Sunset Blvd., Los Angeles, CA, 90027, USA.
Aron MunsonDepartment of Preventive Medicine, University of Southern California Keck School of Medicine, 2001 N. Soto St, Room 302 W, Los Angeles, CA, 90032-3628, USA.
Shrikanth NarayananUniversity of Southern California Viterbi School of Engineering, 3740 McClintock Ave., Los Angeles, CA, 90089-2564, USA.
Abe KazemzadehUniversity of Southern California Viterbi School of Engineering, 3740 McClintock Ave., Los Angeles, CA, 90089-2564, USA.
Roxana CruzUSC University Center for Excellence in Developmental Disabilities at Children's Hospital Los Angeles, MS 53, 4650 Sunset Blvd., Los Angeles, CA, 90027, USA.
Irene MartinezFiesta Educativa, Inc., 161 South Avenue 24, Los Angeles, CA, 90031, USA.
Sheree M SchragerDivision of Hospital Medicine, Children's Hospital Los Angeles, 4650 Sunset Blvd., MS #94, Los Angeles, CA, 90027, USA.
Lisa SchweitzerUniversity of Southern California Price School of Public Policy, 311 RGL, Los Angeles, CA, 90016, USA.
Tara ChklovskiIridescent, 532 W 22nd St., Los Angeles, CA, 90007, USA.
Darryl HwangUniversity of Southern California Viterbi School of Engineering, 3740 McClintock Ave., Los Angeles, CA, 90089-2564, USA.

Funding

Disseminating Scientific Information on Autism to the Latino CommunityRC1MH088600 · NIMH · UNIVERSITY OF SOUTHERN CALIFORNIA · PI LAJONCHERE, CLARA M · 2009 to 2010
$967k
Genome Diner: A strategy for community-researcher engagement in genome sciencesR03HG005040 · NHGRI · DUKE UNIVERSITY · PI HAGA, SUSANNE · 2008 to 2009
$77k
NHGRI NIH HHS R03 HG005040NIMH NIH HHS RC1 MH088600
6 · The paper itself

Abstract

Low income Hispanic families experience multiple barriers to accessing evidence-based information on Autism Spectrum Disorders (ASD). This study utilized a mixed-strategy intervention to create access to information in published bio-medical research articles on ASD by distilling the content into parent-friendly English- and Spanish-language ASD Science Briefs and presenting them to participants using two socially-oriented dissemination methods. There was a main effect for short-term knowledge gains associated with the Science Briefs but no effect for the dissemination method. After 5 months, participants reported utilizing the information learned and 90% wanted to read more Science Briefs. These preliminary findings highlight the potential benefits of distilling biomedical research articles on ASD into parent-friendly educational products for currently underserved Hispanic parents.

Indexed as

AdolescentAdultAutism Spectrum DisorderBiomedical ResearchFemaleHealth LiteracyHispanic or LatinoHumansInformation DisseminationLanguageMaleMiddle AgedParentsPatient Education as TopicBiomedical research on AutismHealth literacyHispanic/LatinoRacial disparities

Identifiers

PMID26563948
PMCPMC5030774

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.