Evidence map›Paper›PMID 26553736›Full record

ArticleThe Gerontologist2017

African Americans and Clinical Research: Evidence Concerning Barriers and Facilitators to Participation and Recruitment Recommendations.

Travonia B Hughes, Vijay R Varma, Corinne Pettigrew, Marilyn S Albert

Registry-linked trialAbstract read
In one paragraph

Article in The Gerontologist, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04683510 (Increasing Recruitment of Underrepresented Cancer Survivors With Awareness Enhancing Interventions), which is not on this map. Cited by 102 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
102citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04683510 nacompletednot on this mapstarted 2021, after this paper: background citation

Increasing Recruitment of Underrepresented Cancer Survivors With Awareness Enhancing Interventions

TypeinterventionalSponsorUniversity of TennesseeRan2021 to 2025Enrolled4,451ConditionsResearch AwarenessArmsNavigation - Study Specific - Researcher Voice, Navigation - Study Specific - Cancer Survivor Voice, Navigation - Research General - Researcher Voice, Navigation - Research General - Cancer Survivor Voice, Brochure - Study Specific - Researcher Voice
3 · Its place in the literature

Who cites it

102 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
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  9. Article
  10. Designing a Culturally Adapted Perioperative Mental Health Intervention for Older Black Male Surgical Patients: A Community-Based Participatory Study.The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry · 2026
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  11. Article
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  14. Review
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  17. From Dialogue to Action: Community Recommendations for Inclusive Research Participation Among Underrepresented Populations.Health expectations : an international journal of public participation in health care and health policy · 2025
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  18. Article
  19. Article
  20. Radical Imagination: An Afrofuturism and Creative Aging Program for Black Women's Brain Health and Wellness.International journal of environmental research and public health · 2025
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42 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Travonia B HughesDepartment of Pharmacy Practice, Hampton University School of Pharmacy, Hampton, Virginia.
Vijay R VarmaDepartment of Mental Health, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland.
Corinne PettigrewDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, Maryland.
Marilyn S AlbertDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, Maryland.

Funding

'T V ASSESSMENT - MEMORY DISORDERED PATIENTS'P50AG005146 · NIA · JOHNS HOPKINS UNIVERSITY · PI HUGANIR, RICHARD L · 1985 to 2019
$37.6M
Research Training in Age-Related Cognitive DisordersT32AG027668 · NIA · JOHNS HOPKINS UNIVERSITY · PI MARILYN S. ALBERT · 2007 to 2026
$6.3M
NIA NIH HHS P50 AG005146NIA NIH HHS T32 AG027668
6 · The paper itself

Abstract

Purpose of the Study: The goal of the study was to examine barriers and facilitators to clinical research participation among African Americans, as well as recommendations for overcoming these. Design and Methods: Eight focus groups were conducted consisting of 64 individuals. These focus groups targeted 2 groups of individuals: (a) community members, including both individuals involved in research and individuals not involved in research, and (b) community leaders, including clergy, community health care providers and service providers who may influence decisions to participate in research. Results: Among participants in both groups, the most common barriers to participation included fear and mistrust of research due to multiple factors, such as a lack of information about research and prevailing knowledge of historical occurrences. Facilitators to research participation included intrinsic factors, such as a desire to help others, and extrinsic factors, such as familiarity with the research recruiter. The focus groups also directly engaged participants in discussions of strategies that might improve recruitment, such as the importance of providing personal stories that enable community members to understand the potential benefits of research. Implications: Findings from these focus groups address the mandate from funding agencies that emphasize the importance of including racially diverse populations in clinical research studies, and offer potential solutions for increasing the recruitment and retention of minority participants.

Indexed as

Alzheimer DiseaseAttitudeBlack or African AmericanPatient SelectionAgedBiomedical ResearchClergyCommunity Health ServicesFemaleFocus GroupsHealth PersonnelHumansMaleMiddle AgedTrustCommunity outreachDiversityFocus groups

Identifiers

PMID26553736
PMCPMC6075213

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.