ArticleBMC nursing2015
The perseverance time of informal carers for people with dementia: results of a two-year longitudinal follow-up study.
Article in BMC nursing, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- Effects of caregiver dementia training in caregiver-patient dyads: A randomized controlled study.International journal of geriatric psychiatry · 2020Trial
- The "more at home with dementia" program: a randomized controlled study protocol to determine how caregiver training affects the well-being of patients and caregivers.BMC geriatrics · 2018Trial
- Article
- Assessing technologies in dementia care: A conceptual health-economic model.Journal of Alzheimer's disease : JAD · 2026Article
- Factors associated with anxiety, stress, depression and burden among informal caregivers of patients with dementia: a cross-sectional study.BMC nursing · 2025Article
- Article
- Predicting informal dementia caregivers' desire to institutionalize through mining data from an eHealth platform.BMC geriatrics · 2024Article
- Article
- Triple aim improvement for individuals, services and society in dementia care : The DementiaNet collaborative care approach.Zeitschrift fur Gerontologie und Geriatrie · 2017Article
- Perseverance time of informal caregivers for people with dementia: construct validity, responsiveness and predictive validity.Alzheimer's research & therapy · 2017Article
- Informal caregivers and persons with dementia's everyday life coping.Health psychology openArticle
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundGiven the projected increase of people with dementia over the next few decades and the related demand for informal care, an important question for health policy makers is to what extent and for how long informal carers can be expected to provide care in a sustainable way. This study aimed to investigate the perseverance time of informal carers for people with dementia.
methodsA 2-year longitudinal cohort study was conducted. Questionnaires were used to collect data about the care situation, the impact of caregiving on carers and their need for support, and the anticipated and realized perseverance time of informal carers for people with dementia living at home. The data were analysed using bivariate and multivariate analyses.
resultsTwo hundred twenty-three carers for people with dementia were included in the study and 25 (11.2 %) dropped out during the follow-up. The results show that after 1 year, 74 (37.4 %) of 198 patients were still living at home, and after 2 years, 44 (22.2 %) patients were still living at home. The variables that were associated with this outcome were identified. When informal carers anticipated that their perseverance time would be less than 1 year, this was indicative of their actual perseverance time.
conclusionsAnticipated perseverance time provides a fair indication of the actual duration of informal care. It is most accurate when carers anticipate a limited rather than an unlimited perseverance time. Although further research is required to support these findings, the concept of perseverance time may be considered a useful additional instrument in health policy and clinical practice for monitoring carers' need for support and for planning the transition of care from home to a nursing home.
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