ArticleJMIR mental health
How Patients Contribute to an Online Psychoeducation Forum for Bipolar Disorder: A Virtual Participant Observation Study.
Article in JMIR mental health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 36 citations in OpenAlex.
- Trial
- Utilization of Netnography as a Health Care Research Methodology: Scoping Review.Journal of medical Internet research · 2025Article
- The Type, Impacts, and Experiences of Peer Support for People Living With Bipolar Disorder: A Scoping Review.Bipolar disorders · 2025Article
- Understanding the Impacts of Online Mental Health Peer Support Forums: Realist Synthesis.JMIR mental health · 2024Article
- Posting patterns in peer online support forums and their associations with emotions and mood in bipolar disorder: Exploratory analysis.PloS one · 2023Article
- Social Media Use and Well-being With Bipolar Disorder During the COVID-19 Pandemic: Path Analysis.JMIR formative research · 2022Article
- Digital Health Literacy in Bipolar Disorder: International Web-Based Survey.JMIR mental health · 2021Article
- Identifying Self-Management Support Needs for Pregnant Women With Opioid Misuse in Online Health Communities: Mixed Methods Analysis of Web Posts.Journal of medical Internet research · 2021Article
- Preferences of Information Dissemination on Treatment for Bipolar Disorder: Patient-Centered Focus Group Study.JMIR mental health · 2019Article
- A Thematic Analysis of Stigma and Disclosure for Perinatal Depression on an Online Forum.JMIR mental health · 2016Article
- "I Use Weed for My ADHD": A Qualitative Analysis of Online Forum Discussions on Cannabis Use and ADHD.PloS one · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundIn a recent exploratory randomized controlled trial, an online psychoeducation intervention for bipolar disorder has been found to be feasible and acceptable to patients and may positively impact on their self-management behaviors and quality of life.
objectiveThe objective of the study was to investigate how these patients contribute to an online forum for bipolar disorder and the issues relevant for them.
methodsParticipants in the intervention arm of the Bipolar Interactive PsychoEDucation ("BIPED") trial were invited to contribute to the Beating Bipolar forum alongside receiving interactive online psychoeducation modules. Within this virtual participant observation study, forum posts were analyzed using thematic analysis, incorporating aspects of discourse analysis.
resultsThe key themes which arose from the forum posts included: medication, employment, stigma, social support, coping strategies, insight and acceptance, the life chart, and negative experiences of health care. Participants frequently provided personal narratives relating to their history of bipolar disorder, life experiences, and backgrounds, which often contained emotive language and humor. They regularly sought and offered advice, and expressed encouragement and empathy. The forum would have benefitted from more users to offer a greater support network with more diverse views and experiences.
conclusionsOnline forums are inexpensive to provide and may offer peer support and the opportunity for patients to share their experiences and explore issues related to their illness anonymously. Future research should focus on how to enhance patient engagement with online health care forums.
trial registrationISRCTN81375447; http://www.isrctn.com/ISRCTN81375447 (Archived by WebCite at http://www.webcitation.org/6YzWtHUqu).
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.