Evidence map›Paper›PMID 26541408›Full record

ArticleBMC research notes2015

Cancer patients' participation in population-based health surveys: findings from the HUNT studies.

Sophie D Fosså, Alv A Dahl, Arnulf Langhammer, Harald Weedon-Fekjær

Open access · goldAbstract read
In one paragraph

Article in BMC research notes, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.4field-weighted citation impact, top 33% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 7 citations in OpenAlex.

  1. Risk factors for right colon, left colon and rectal cancers differ between men and women: the population-based HUNT study in Norway.Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland · 2023
    Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 3 institutions in 1 country.

Sophie D FossåNational Advisory Unit for Late Effects after Cancer Therapy, Oslo University Hospital, Radium Hospitalet and Cancer Registry of Norway, P.O.Box 4953, Nydalen, 0424, Oslo, Norway. sdf@ous-hf.no.
Alv A DahlNational Advisory Unit for Late Effects after Cancer Therapy, Oslo University Hospital, Radium Hospitalet and Cancer Registry of Norway, P.O.Box 4953, Nydalen, 0424, Oslo, Norway. a.a.dahl@ibv.uio.no.
Arnulf LanghammerHUNT Research Centre, Department of Public Health and General Practice, Norwegian University of Science and Technology, Levanger, Norway. Arnulf.Langhammer@ntnu.no.
Harald Weedon-FekjærOslo Center for Biostatistics and Epidemiology, Research Support Services, Oslo University Hospital, Oslo, Norway. Harald.Weedon-Fekjar@medisin.uio.no.
Oslo University Hospital · NONorwegian University of Science and Technology · NOUniversity of Oslo · NO

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe magnitude of participation bias due to non-participation should be considered for cancer patients invited to population-based surveys. We studied participation rates among persons with and without cancer in a large population based study, the Nord-Trøndelag Health Study (HUNT).

methodsCitizens 20 years or above living in the Nord-Trøndelag County of Norway have been invited three times to comprehensive health surveys. The invitation files with data on sex, invitation date and participation were linked to the Cancer Registry of Norway. In a first step unadjusted crude participation rates (participants/invited persons) were estimated for cancer patients (CaPts) and non-cancer persons (NonCaPers), followed by logistic regression analyses with adjustment for age and sex. To evaluate the "practical" significance of the estimated odds ratios in the cancer diagnosis group, relative risks were also estimated comparing the observed rates to the estimated rates under the counterfactual assumption of no earlier cancer diagnosis among CaPts.

resultsOverall 3 % of the participants in the three HUNT studies were CaPts and 59 % of them had been diagnosed with their first life-time cancer >5 years prior to each survey. In each of the three HUNT surveys crude participation rates were similar for CaPts and NonCaPers. Adjusted for sex and age, CaPts' likelihood to participate in HUNT1 (1984-86) and HUNT2 (1995-97), but not in HUNT3 (2006-2008), was statistically significantly reduced compared to NonCaPers, equaling a relative risk of 0.98 and 0.96, respectively. The lowest odds ratio emerged for CaPts diagnosed during the last 2 years preceding a HUNT invitation. Only one-third of CaPts participating in a survey also participated in the subsequent survey compared to approximately two-thirds of NonCaPers, and 11 % of CaPts participated in all three HUNT surveys compared to 37 % of NonCaPers.

conclusionIn the three HUNT surveys no or only minor participation bias exist as to CaPts' participation rates. In longitudinal studies selection bias as to long-term cancer survivorship should be taken into account, the percentage of repeatedly participating CaPts diminishing more strongly than among NonCaPers.

Indexed as

AdultAgedAged, 80 and overAge FactorsFemaleHealth SurveysHumansLogistic ModelsMaleMiddle AgedNeoplasmsNorwayPatient ParticipationRegistriesSex FactorsYoung Adult

Identifiers

PMID26541408
PMCPMC4634816
OpenAlexW2125806552

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.