ArticleThe Journal of pediatrics2016
Health Services and Health Care Needs Fulfilled by Structured Clinical Programs for Children with Medical Complexity.
Article in The Journal of pediatrics, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
32 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Comprehensive care programmes for children with medical complexity.The Cochrane database of systematic reviews · 2024Pooled it
- Novel Web-Based Technology to Promote Goal-Setting in Complex Chronic Illness: Randomized Controlled Trial.JMIR human factors · 2026Trial
- Health-Related Quality of Life Outcomes of a Telehealth Care Coordination Intervention for Children With Medical Complexity: A Randomized Controlled Trial.Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & PractitionersTrial
- "A very different place from when the pandemic started": Lessons learned for improving systems of care for families of children with medical complexity.Journal of child health care : for professionals working with children in the hospital and community · 2025Article
- Health care utilization after enrollment in an outpatient structured clinical program for children with medical complexity.Paediatrics & child health · 2024Article
- Drivers that decrease hospital-delivered care in children with medical complexity: Parental perspectives.Paediatrics & child health · 2024Article
- Exploring fathers' experiences of caring for a child with complex care needs through ethnography and arts-based methodologies.BMC pediatrics · 2024Article
- Surviving transition: A qualitative case study on how families adapt as their youth with medical complexity transitions from child to adult systems of care.Health care transitions · 2024Article
- Pediatric Hospitalizations at Rural and Urban Teaching and Nonteaching Hospitals in the US, 2009-2019.JAMA network open · 2023Article
- Barriers and Facilitators to the Implementation of Family-Centered Technology in Complex Care: Feasibility Study.Journal of medical Internet research · 2022Article
- [Fatigue, quality of life, and use of healthcare resources in children with complex chronic diseases].Anales del sistema sanitario de Navarra · 2022Article
- Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications.Children (Basel, Switzerland) · 2022Article
- Feasibility Testing of Tubes@HOME: A Mobile Application to Support Family-Delivered Enteral Care.Hospital pediatrics · 2022Article
- Feasibility of implementing systematic social needs assessment for children with medical complexity.Implementation science communications · 2021Article
- Medical complexity and concurrent hospice care: A national study of Medicaid children from 2011 to 2013.Journal for specialists in pediatric nursing : JSPN · 2021Article
- Process Evaluation of a Hub-and-Spoke Model to Deliver Coordinated Care for Children with Medical Complexity across Ontario: Facilitators, Barriers and Lessons Learned.Healthcare policy = Politiques de sante · 2021Article
- Telemedicine Video Visits for Children with Medical Complexity in a Structured Clinical Complex Care Program.Global pediatric health · 2020Article
- 'It would be much easier if we were just quiet and disappeared': Parents silenced in the experience of caring for children with rare diseases.Health expectations : an international journal of public participation in health care and health policy · 2019Article
- Pediatric palliative care in the medical neighborhood for children with medical complexity.Families, systems & health : the journal of collaborative family healthcare · 2019Article
- Encounters From Device Complications Among Children With Medical Complexity.Hospital pediatrics · 2019Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
objectiveTo describe family-reported health service needs of children with medical complexity (CMC) and to assess which needs are more often addressed in a tertiary care center-based structured clinical program for CMC. STUDY
designMailed survey to families of CMC enrolled in a structured-care program providing care coordination and oversight at 1 of 3 children's hospitals. Outcomes included receipt of 14 specific health service needs. Paired t tests compared unmet health care needs prior to and following program enrollment.
resultsFour hundred forty-one of 968 (46%) surveys were returned and analyzed. Respondents reported their children had a mean age of 7 (SD 5) years. A majority of respondents reported the child had developmental delay (79%) and feeding difficulties (64%). Of the respondents, 56% regarded the primary care provider as the primary point of contact for medical issues. Respondents reported an increase in meeting all 14 health services needs after enrollment in a tertiary care center-based structured clinical program, including primary care checkups (82% vs 96%), therapies (78% vs 91%), mental health care (34% vs 58%), respite care (56% vs 75%), and referrals (51% vs 83%) (all P < .001).
conclusionsTertiary care center-based structured clinical care programs for CMC may address and fulfill a broad range of health service needs that are not met in the primary care setting.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.