ArticleBMC palliative care2015
Patients' perceptions of palliative care: adaptation of the Quality from the Patient's Perspective instrument for use in palliative care, and description of patients' perceptions of care received.
Article in BMC palliative care, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
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Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Description of patient reported experience measures (PREMs) for hospitalised patients with palliative care needs and their families, and how these map to noted areas of importance for quality care: A systematic review.Palliative medicine · 2023Pooled it
- Measuring Palliative Care-Related Knowledge, Attitudes, and Confidence in Home Health Care Clinicians, Patients, and Caregivers: A Systematic Review.Journal of palliative medicine · 2022Pooled it
- Perceived quality of physiotherapist-led orthopaedic triage compared with standard practice in primary care: a randomised controlled trial.BMC musculoskeletal disorders · 2016Trial
- Physicians' perspectives of palliative care quality in nursing homes: a cross-sectional study.Scandinavian journal of primary health care · 2027Article
- Article
- Measuring the quality of patient-provider relationships in serious illness: A scoping review.Palliative medicine · 2025Article
- Physicians' Perceptions of the Quality of Palliative Care and of the Importance of Collaboration in Interdisciplinary Teams in Norwegian Nursing Homes.Journal of multidisciplinary healthcare · 2025Article
- Physicians' understandings and experience of advance care planning in Norwegian nursing homes: a qualitative study.BMC palliative care · 2024Article
- Association of perceived life satisfaction with attitudes toward life-sustaining treatment among the elderly in South Korea: a cross-sectional study.BMC palliative care · 2022Article
- Palliative care in home health care services and hospitals - the role of the resource nurse, a qualitative study.BMC palliative care · 2022Article
- Palliative care in the community - the role of the resource nurse, a qualitative study.BMC palliative care · 2021Article
- Construct Validity of the Questionnaire Quality From the Patients Perspective Adapted for Surgical Prostate Cancer Patients.Journal of patient experience · 2021Article
- Assessing and reporting patient participation by means of patient preferences and experiences.BMC health services research · 2020Article
- A sense of security in palliative homecare in a Norwegian municipality; dyadic comparisons of the perceptions of patients and relatives - a quantitative study.BMC palliative care · 2020Article
- Development of a Short Form of the Questionnaire Quality from the Patient's Perspective for Palliative Care (QPP-PC).Journal of multidisciplinary healthcare · 2020Article
- Patients' Perceptions Of The Quality Of Palliative Care And Satisfaction - A Cluster Analysis.Journal of multidisciplinary healthcare · 2019Article
- The relationships between the combination of person- and organization-related conditions and patients' perceptions of palliative care quality.BMC palliative care · 2017Article
- Patients' perceptions of palliative care quality in hospice inpatient care, hospice day care, palliative units in nursing homes, and home care: a cross-sectional study.BMC palliative care · 2016Article
- The Development of the Community-based Palliative Care Model in a District Health System, Phitsanulok Province, Thailand.Indian journal of palliative careArticle
- The Development of Instrument to Assess Physician's Practice in the Management of Patients With Terminal Diseases.Journal of primary care & community healthArticle
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInstruments specific to palliative care tend to measure care quality from relative perspectives or have insufficient theoretical foundation. The instrument Quality from the Patient's Perspective (QPP) is based on a model for care quality derived from patients' perceptions of care, although it has not been psychometrically evaluated for use in palliative care. The aim of this study was to adapt the QPP for use in palliative care contexts, and to describe patients' perceptions of the care quality in terms of the subjective importance of the care aspects and the perceptions of the care received.
methodA cross-sectional study was conducted between November 2013 and December 2014 which included 191 patients (73% response rate) in late palliative phase at hospice inpatient units, hospice day-care units, wards in nursing homes that specialized in palliative care and homecare districts, all in Norway. An explorative factor analysis using principal component analysis, including data from 184 patients, was performed for psychometric evaluation. Internal consistency was assessed by Cronbach's alpha and paired t-tests were used to describe patients' perceptions of their care.
resultsThe QPP instrument was adapted for palliative care in four steps: (1) selecting items from the QPP, (2) modifying items and (3) constructing new items to the palliative care setting, and (4) a pilot evaluation. QPP instrument specific to palliative care (QPP-PC) consists of 51 items and 12 factors with an eigenvalue ≥1.0, and showed a stable factor solution that explained 68.25% of the total variance. The reliability coefficients were acceptable for most factors (0.79-0.96). Patients scored most aspects of care related to both subjective importance and actual care received as high. Areas for improvement were symptom relief, participation, continuity, and planning and cooperation.
conclusionThe QPP-PC is based on a theoretical model of quality of care, and has its roots in patients' perspectives. The instrument was developed and psychometrically evaluated in a sample of Norwegian patients with various diagnoses receiving palliative care in different care contexts. The evaluation of the QPP-PC shows promising results, although it needs to be further validated and tested in other contexts and countries.
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