Evidence map›Paper›PMID 26518006›Full record

ArticleMaternal and child health journal2016

Shared Decision Making in the Care of Children with Developmental and Behavioral Disorders.

Ellen A Lipstein, Olivia J Lindly, Julia S Anixt, Maria T Britto, Katharine E Zuckerman

Abstract readComparative Study
In one paragraph

Article in Maternal and child health journal, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
18citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

18 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Article
  4. Article
  5. Review
  6. Review
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Attitudes of Mothers Regarding Willingness to Enroll Their Children in Research.Journal of empirical research on human research ethics : JERHRE · 2020
    Article
  14. Article
  15. Article
  16. Article
  17. Article
  18. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Ellen A LipsteinDivision of Adolescent Medicine, Center for Innovation in Chronic Disease Care, Cincinnati Children's Hospital Medical Center, 3333 Burnet Ave, MLC 7027, Cincinnati, OH, 45229, USA. ellen.lipstein@cchmc.org.
Olivia J LindlyCollege of Public Health and Human Sciences, Oregon State University, 401 Waldo Hall, Corvallis, OR, USA. olindly@gmail.com.
Julia S AnixtJames M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, 3333 Burnet Ave, Cincinnati, OH, USA. julia.anixt@cchmc.org.
Maria T BrittoDivision of Adolescent Medicine, Center for Innovation in Chronic Disease Care, Cincinnati Children's Hospital Medical Center, 3333 Burnet Ave, MLC 7027, Cincinnati, OH, 45229, USA. maria.britto@cchmc.org.
Katharine E ZuckermanDivision of General Pediatrics, Department of Pediatrics, Oregon Health & Science University, 700 S.W. Campus Drive, Portland, OR, USA. zuckerma@ohsu.edu.

Funding

Reducing Barriers to Autism Care in Latino ChildrenK23MH095828 · NIMH · OREGON HEALTH & SCIENCE UNIVERSITY · PI ZUCKERMAN, KATHARINE ELIZABETH · 2012 to 2016
$898k
Shared Decision Making In Pediatric Chronic Conditions: Biologics in IBD and JIAK23HD073149 · NICHD · CINCINNATI CHILDRENS HOSP MED CTR · PI LIPSTEIN, ELLEN A · 2012 to 2016
$656k
NICHD NIH HHS 1K23HD073149NICHD NIH HHS K23 HD073149NIMH NIH HHS 1K23MH095828NIMH NIH HHS K23 MH095828
6 · The paper itself

Abstract

objectiveShared decision making (SDM) is most needed when there are multiple treatment options and no "right" choice. As with quality and experience of care, frequency of SDM may vary by health condition. The objectives of this study were (1) to compare parent report of SDM between a physical and a behavioral health condition and; (2) to compare parent report of SDM between two different behavioral health conditions.

methodsData on children age 3-17 years with asthma, attention deficit/hyperactivity disorder (ADHD), and/or autism spectrum disorder (ASD) were drawn from the 2009/10 National Survey of Children with Special Health Care Needs. Weighted logistic regression was used to compare a parent-reported, composite measure of SDM. Analyses controlled for sociodemographic factors that may influence experience of SDM.

resultsCompared to parents of children with asthma, parents of children with ADHD were significantly less likely to report experiencing consistent SDM (AOR 0.73). Compared to parents of children with ADHD, those of children with ASD had significantly lower odds of experiencing consistent SDM (AOR 0.59). Those with both ADHD and ASD had the same odds as those with ASD alone of experiencing consistent SDM.

conclusionUse of SDM is particularly limited in developmental and behavioral conditions, such as ADHD and ASD. These data suggest that challenges to implementing SDM may include disease type, complexity, and use of specialty care. Research to identify specific barriers and facilitators of SDM is needed to inform interventions that will promote SDM in developmental and behavioral conditions.

Indexed as

Decision MakingParentsProfessional-Family RelationsAdolescentAsthmaAttention Deficit Disorder with HyperactivityAutism Spectrum DisorderCaregiversChildChild, PreschoolChildren with DisabilitiesFemaleHumansLogistic ModelsMaleParent-Child RelationsAsthmaAttention deficit/hyperactivity disorderAutismChronic conditionsShared decision making

Identifiers

PMID26518006
PMCPMC4754131

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.