ArticlePloS one2015
The Many Facets of Genetic Literacy: Assessing the Scalability of Multiple Measures for Broad Use in Survey Research.
Article in PloS one, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
36 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Citizens' Attitudes, Knowledge, and Educational Needs in the Field of Omics Sciences: A Systematic Literature Review.Frontiers in genetics · 2020Pooled it
- The impact of the number of tests presented and a provider recommendation on decisions about genetic testing for cancer risk.Patient education and counseling · 2021Trial
- Do genetic ancestry tests increase racial essentialism? Findings from a randomized controlled trial.PloS one · 2020Trial
- Genetic literacy assessment among medical students using the Indonesian adaptation of the University of North Carolina Genomic Knowledge Scale.Journal of community genetics · 2026Article
- Cross-Cultural Adaptation of the University of North Carolina Genomic Knowledge Scale: Translation and Psychometric Validation in Japanese Populations.Journal of genetic counseling · 2026Article
- Gene Therapy: Knowledge, Attitudes, and Preferences Among Individuals with Alpha-1 Antitrypsin Deficiency.Chronic obstructive pulmonary diseases (Miami, Fla.) · 2026Article
- Psychometric Validation of the Education and Assessment of Genetic Literacy (EAGL) Measure.bioRxiv : the preprint server for biology · 2026Article
- Neighborhood Opportunity and Genetic Literacy in a Representative Sample of US Adults.Prevention science : the official journal of the Society for Prevention Research · 2026Article
- "It was up to me to be curious": perceptions and experiences of students with intellectual disability on genetics and health education.European journal of human genetics : EJHG · 2026Article
- Interaction of identity and beliefs with genetic literacy.American journal of human genetics · 2026Article
- Interest in Genetic Testing for Hereditary Cancer Risk: Associations with Genetic Familiarity, Self-Efficacy, and Sociodemographics.Public health genomics · 2026Article
- Wild yeast isolation by middle-school students reveals features of populations residing on North American oaks.G3 (Bethesda, Md.) · 2025Article
- Awareness of Genetic Testing and Its Impact on Changing Behavior among General Population of the USA: Health Information National Trends Survey (HINTS 2022).Lifestyle genomics · 2025Article
- Evaluating the Applied Knowledge of BRCA Testing among Spanish-Preferring Latino Americans: The Influence of Acculturation and Literacy.Public health genomics · 2025Article
- Wild yeast isolation by middle school students reveals features of North American oak populations ofbioRxiv : the preprint server for biology · 2024Article
- Publics' knowledge of, attitude to and motivation towards health-related genomics: a scoping review.European journal of human genetics : EJHG · 2024Article
- Assessment of genetic familiarity and genetic knowledge among Palestinian university students.BMC medical education · 2024Article
- Provider-reported experiences, barriers, and perspectives on genetic testing as part of autism diagnosis.PloS one · 2024Article
- Variability in conceptualizations and measurement of genetic literacy.PEC innovation · 2023Article
- Public attitudes toward cloud computing and willingness to share personal health records (PHRs) and genome data for health care research in Japan.Human genome variation · 2023Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
objectivesTo determine how three dimensions of genetic literacy (familiarity, skills, and factual knowledge) fit the hierarchy of knowledge outlined in E.M. Rogers' Diffusion of Innovations to better conceptualize lay understandings of genomics.
methodsA consumer panel representing the US adult population (N = 1016) completed an electronic survey in November 2013. Adjusting for education, we used correlations, principle components analysis, Mokken Scale tests, and linear regressions to assess how scores on the three genetic literacy sub-dimensions fit an ordered scale.
resultsThe three scores significantly loaded onto one factor, even when adjusting for education. Analyses revealed moderate strength in scaling (0.416, p<0.001) and a difficulty ordering that matched Rogers' hierarchy (knowledge more difficult than skills, followed by familiarity). Skills scores partially mediated the association between familiarity and knowledge with a significant indirect effect (0.241, p<0.001).
conclusionWe established an ordering in genetic literacy sub-dimensions such that familiarity with terminology precedes skills using information, which in turn precedes factual knowledge. This ordering is important to contextualizing previous findings, guiding measurement in future research, and identifying gaps in the understanding of genomics relevant to the demands of differing applications.
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