Evidence map›Paper›PMID 26507369›Full record

ArticleEuropean journal of cancer care2016

Development and usability testing of a web-based self-management intervention for oral cancer survivors and their family caregivers.

H Badr, D Lipnick, M A Diefenbach, M Posner, T Kotz, B Miles, E Genden

Registry-linked trialOpen access · greenAbstract readEvaluation Study
In one paragraph

Article in European journal of cancer care, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04159363 (The Effectiveness of an Interactive Colorectal Cancer Self-Management Enhancement Smartphone-based Psychosocial Intervention Programme), which is not on this map. Cited by 27 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
27citing papers in PubMed, 4 pooled it
1.7field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04159363 naunknown statusnot on this mapstarted 2020, after this paper: background citation

The Effectiveness of an Interactive Colorectal Cancer Self-Management Enhancement Smartphone-based Psychosocial Intervention Programme (iCanManage) on Outcomes of Patients With Colorectal Cancer and Their Family Caregivers

TypeinterventionalSponsorSingapore Cancer SocietyRan2020 to 2021Enrolled200ConditionsColorectal CancerArmsAn interactive Colorectal Cancer self-Management enhancement smartphone-based psychosocial intervention programme (iCanManage)
3 · Its place in the literature

Who cites it

27 citing papers in PubMed, 4 syntheses or guidelines pooled it, 58 citations in OpenAlex.

  1. Pooled it
  2. Health information technology to support cancer survivorship care planning: A systematic review.Journal of the American Medical Informatics Association : JAMIA · 2021
    Pooled it
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  9. The role of prehabilitation in HNSCC patients treated with chemoradiotherapy.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
    Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 2 institutions in 1 country.

H BadrDepartment of Oncological Sciences, Icahn School of Medicine at Mount Sinai, New York City, NY, USA.
D LipnickDepartment of Oncological Sciences, Icahn School of Medicine at Mount Sinai, New York City, NY, USA.
M A DiefenbachDepartments of Medicine and Urology, North Shore - Long Island Jewish Health Systems, New York City, NY, USA.
M PosnerDepartment of Otolaryngology, Icahn School of Medicine at Mount Sinai, New York City, NY, USA.
T KotzDepartment of Otolaryngology, Icahn School of Medicine at Mount Sinai, New York City, NY, USA.
B MilesDepartment of Otolaryngology, Icahn School of Medicine at Mount Sinai, New York City, NY, USA.
E GendenDepartment of Otolaryngology, Icahn School of Medicine at Mount Sinai, New York City, NY, USA.
Icahn School of Medicine at Mount Sinai · USNorthwell Health · US

Funding

Improving Oral Health and Quality of Life After Oral Cancer: A Web-based ApproachR34DE022273 · NIDCR · ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI · PI BADR, HODA J. · 2011 to 2012
$474k
NIDCR NIH HHS R34 DE022273
6 · The paper itself

Abstract

Oral cancer (OC) survivors experience debilitating side effects that affect their quality of life (QOL) and that of their caregivers. This study aimed to develop and evaluate a dyadic, web-based intervention to improve survivor self-management and survivor/caregiver QOL. A qualitative needs assessment (semi-structured interviews) with 13 OC survivors and 12 caregivers was conducted to discern information and support needs as well as preferences regarding website features and tools. Results using Grounded Theory analysis showed that OC survivors and caregivers: (1) want and need practical advice about managing side effects; (2) want to reach out to other survivors/caregivers for information and support; and (3) have both overlapping and unique needs and preferences regarding website features. Usability testing (N = 6 survivors; 5 caregivers) uncovered problems with the intuitiveness, navigation and design of the website that were subsequently addressed. Users rated the website favourably on the dimensions of attractiveness, controllability, efficiency, intuitiveness and learnability, and gave it a total usability score of 80/100. Overall, this study demonstrates that OC survivors and caregivers are interested in using an online programme to improve QOL, and that providing tailored website content and features based on the person's role as survivor or caregiver is important in this population.

Indexed as

InternetAgedCaregiversFemaleHumansMaleMiddle AgedMouth NeoplasmsNeeds AssessmentQuality of LifeSelf CareSocial SupportSurvivorsUser-Computer Interfacehead and neck cancerpatient education

Identifiers

PMID26507369
PMCPMC4848171
OpenAlexW1845329719

What OpenQuestion holds

Textmetadata
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.