ArticleJournal of cancer research and clinical oncology2016
Prostate cancer patients' report on communication about endocrine therapy and its association with adherence.
Article in Journal of cancer research and clinical oncology, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- Self-help management of side effects in female cancer patients -analysis of the forum of the Women's Self-help Association against cancer.BMC cancer · 2025Article
- Factors associated with perceived medication safety during transitions of care in patients with cancer: A secondary data analysis of a cross-sectional survey.European journal of oncology nursing : the official journal of European Oncology Nursing Society · 2025Article
- Shared decision making, physicians' explanations, and treatment satisfaction: a cross-sectional survey of prostate cancer patients.BMC medical informatics and decision making · 2020Article
- Importance of and Satisfaction with Information about Their Disease in Cancer Patients.Journal of cancer education : the official journal of the American Association for Cancer Education · 2020Article
- Information needs, communication and usage of social media by cancer patients and their relatives.Journal of cancer research and clinical oncology · 2019Article
- Unmet supportive care needs in Hispanic/Latino cancer survivors: prevalence and associations with patient-provider communication, satisfaction with cancer care, and symptom burden.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Article
- The role of the general practitioner in cancer care: a survey of the patients' perspective.Journal of cancer research and clinical oncology · 2017Article
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundEndocrine therapy is a mainstay of prostate cancer therapy. Given that few data exist on patient physician communication with regard to this field of therapy and adherence, we conducted a survey of patient members of a German support organization. PATIENTS AND
methodsWe developed a structured questionnaire that was tested in a pilot version and then programmed as an online questionnaire.
resultsThe questionnaire was completed by 694 patients. While 58 % of participants rated the information they received as comprehensive, 42 % did not. Fifty-one percentage stated that they were informed of side effects in detail, and 35 % received information on supportive treatments available in the event of side effects. Patients with higher education more often reported receiving information on side effects (p = 0.036) as well as alternatives for treatment (p = 0.001). Only 13 % stated that their questions were answered in detail, with 43 % receiving no answers or only non-detailed answers. Additional information was sought by 82 %, mostly from the Internet (67 %) and patient support groups (66 %). Seventy-six percentage experienced side effects that imposed limitations on their daily activities. Of those patients with side effects, 60 % reported that their physicians did not react to their complaints. There is a significant association between side effects in general and depression in particular and non-adherence (p < 0.01 and p = 0.002, respectively). In contrast, better information on side effects is associated with better adherence (p < 0001).
conclusionIn order to improve adherence, detailed information on side effects and comprehensive supportive care is most important. Physicians should not rely on written information but should rather mainly engage in direct communication.
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