ArticleJournal of pediatric hematology/oncology2015
Transitioning Adolescents and Young Adults With Sickle Cell Disease From Pediatric to Adult Health Care: Provider Perspectives.
Article in Journal of pediatric hematology/oncology, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
29 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Transition of children with life-limiting conditions to adult care and healthcare use: a systematic review.Pediatric research · 2021Pooled it
- Improving self-management in adolescents with sickle cell disease.Pediatric blood & cancer · 2020Trial
- [Status and influencing factors of transition preparation in adolescents with thalassemia major].Zhongguo dang dai er ke za zhi = Chinese journal of contemporary pediatrics · 2026Article
- Barriers to sickle cell disease care: a biopsychosocial analysis mapped to the standards of care guidelines by the sickle pan African research consortium.Journal of public health (Oxford, England) · 2026Article
- Article
- Transition and clinical outcomes among AYA with sickle cell disease.Health care transitions · 2026Article
- Improving Health Care Transition for Young Patients With Sickle Cell Disease Through Quality Network.JAMA network open · 2025Observational
- Barriers and supports for Indigenous youth and young adults with childhood- onset chronic health conditions transitioning from pediatric to adult healthcare: a qualitative study.International journal for equity in health · 2024Article
- Experiences with healthcare navigation and bias among adult women with sickle cell disease: a qualitative study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Stroke Prevention and Treatment for Youth with Sickle Cell Anemia: Current Practice and Challenges and Promises for the Future.Current neurology and neuroscience reports · 2024Review
- Developing a transition workshop for adolescents with sickle cell disease.Health care transitions · 2024Article
- Letting go/ moving on: A scoping review of relational effects on transition to adult care.Health care transitions · 2024Article
- Parental Involvement in the Transition from Paediatric to Adult Care for Youth with Chronic Illness: A Scoping Review of the North American Literature.International journal of pediatrics · 2023Article
- Impact of Perceived Barriers on Patient Engagement and Attitudes towards Transition and Transfer.Children (Basel, Switzerland) · 2022Article
- Defining Transition Success for Young Adults with Inflammatory Bowel Disease According to Patients, Parents and Health Care Providers.Journal of the Canadian Association of Gastroenterology · 2022Article
- Pediatric-Adult Care Transition: Perceptions of Adolescent and Young Adult Patients with Sickle Cell Disease and Their Healthcare Providers.Patient preference and adherence · 2022Article
- Mobile health use predicts self-efficacy and self-management in adolescents with sickle cell disease.Translational behavioral medicine · 2021Article
- Biopsychosocial Predictors of Quality of Life in Paediatric Patients With Sickle Cell Disease.Frontiers in psychology · 2021Article
- An assessment of the continuing medical education needs of US physicians in the management of patients with beta thalassemia.Annals of hematology · 2021Article
- A program of transition to adult care for sickle cell disease.Hematology. American Society of Hematology. Education Program · 2019Review
Corrections and comments
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Authors and funding
12 authors.
Funding
Abstract
The transition from pediatric to adult health care is often challenging for adolescents and young adults with sickle cell disease (SCD). Our study aimed to identify (1) measures of success for the transition to adult health care; and (2) barriers and facilitators to this process. We interviewed 13 SCD experts and asked them about their experiences caring for adolescents and young adults with SCD. Our interview guide was developed based on Social-Ecological Model of Adolescent and Young Adult Readiness to Transition framework, and interviews were coded using the constant comparative method. Our results showed that transition success was measured by health care utilization, quality of life, and continuation on a stable disease trajectory. We also found that barriers to transition include negative experiences in the emergency department, sociodemographic factors, and adolescent skills. Facilitators include a positive relationship with the provider, family support, and developmental maturity. Success in SCD transition is primarily determined by the patients' quality of relationships with their parents and providers and their developmental maturity and skills. Understanding these concepts will aid in the development of future evidence-based transition care models.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.