ArticleMedical care2015
High Intensity of End-of-Life Care Among Adolescent and Young Adult Cancer Patients in the New York State Medicaid Program.
Article in Medical care, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 46 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
46 citing papers in PubMed, 3 syntheses or guidelines pooled it, 96 citations in OpenAlex.
- The Current State of Palliative Care Research for Adolescents and Young Adults With Cancer: A Systematic Review and Meta-Thematic Analysis of Empirical Literature.Psycho-oncology · 2025Pooled it
- Predictors for place of death among children:A systematic review and meta-analyses of recent literature.European journal of pediatrics · 2020Pooled it
- Health Insurance Coverage Disruptions and Cancer Care and Outcomes: Systematic Review of Published Research.Journal of the National Cancer Institute · 2020Pooled it
- Adolescents and young adults with cancer conversations following participation in an advance care planning video pilot.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Trial
- A Pilot Randomized Trial of an Advance Care Planning Video Decision Support Tool for Adolescents and Young Adults With Advanced Cancer.Journal of the National Comprehensive Cancer Network : JNCCN · 2023Trial
- Pediatric advance care planning (pACP) for teens with cancer and their families: Design of a dyadic, longitudinal RCCT.Contemporary clinical trials · 2017Trial
- Timing and Outcomes of Palliative Care Integration Into Care of Adolescents and Young Adults With Advanced Cancer.JCO oncology practice · 2026Article
- Acute Care Use and Prognosis in Older Adults Presenting to the Emergency Department.Journal of pain and symptom management · 2025Article
- Preferred and Actual Location of Death in Adolescents and Young Adults With Cancer.JAMA network open · 2025Article
- Emergency Department Use in Adolescent and Young Adult Cancer Early Survivors from 2006 to 2020.Journal of adolescent and young adult oncology · 2024Article
- Use of cancer-directed therapy at the end of life among adolescents and young adults.Journal of the National Cancer Institute · 2024Article
- Quality of End-of-Life Care Among Adolescents and Young Adults With Cancer.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2024Article
- Discussions About Goals of Care and Advance Care Planning Among Adolescents and Young Adults With Cancer Approaching the End of Life.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2023Article
- Post-Acute Care Outcomes of Cancer Patients <65 Reveal Disparities in Care Near the End of Life.Journal of palliative medicine · 2023Article
- Quality Indicators for Adolescents and Young Adults With Advanced Cancer: A Modified Delphi Process With Patients, Family Members, and Clinicians.Journal of pain and symptom management · 2023Article
- Factors Affecting Hospice Use Among Adolescents and Young Adult Cancer Patients.Journal of adolescent and young adult oncology · 2023Article
- Effect of the COVID-19 Pandemic on Place of Death Among Medicaid and Commercially Insured Patients With Cancer in Washington State.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2023Article
- Patient, Family, and Clinician Perspectives on Location of Death for Adolescents and Young Adults With Cancer.JCO oncology practice · 2022Article
- End-of-life care quality for children with cancer who receive palliative care.Pediatric blood & cancer · 2022Article
- Voicing their choices: Advance care planning with adolescents and young adults with cancer and other serious conditions.Palliative & supportive care · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundLittle is known about the care that adolescent and young adult (AYA) cancer patients receive at the end of life (EOL).
objectiveTo evaluate use of intensive measures and hospice and location of death of AYA cancer patients insured by Medicaid in New York State.
designUsing linked patient-level data from the New York State Cancer Registry and state Medicaid program, we identified 705 Medicaid patients who were diagnosed with cancer between the ages of 15 and 29 in the years 2004-2011, who subsequently died, and who were continuously enrolled in Medicaid in the last 60 days of life. We evaluated use of intensive EOL measures (chemotherapy within 14 d of death; intensive care unit care, >1 emergency room visit, and hospitalizations in the last 30 d of life), hospice use, and location of death (inpatient hospice, long-term care facility, acute care facility, home with hospice, home without hospice).
results75% of AYA Medicaid decedents used at least 1 aspect of intensive EOL care. 38% received chemotherapy in the last 2 weeks of life; 21% received intensive care unit care, 44% had >1 emergency room visit, and 64% were hospitalized in the last month of life. Only 23% used hospice. 65% of patients died in acute care settings, including the inpatient hospital or emergency room.
conclusionsGiven the high rates of intensive measures and low utilization of hospice at the EOL among AYA Medicaid enrollees, opportunities to maximize the quality of EOL care in this high-risk group should be prioritized.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.