ArticleAutism : the international journal of research and practice2016
Diagnosis lost: Differences between children who had and who currently have an autism spectrum disorder diagnosis.
Article in Autism : the international journal of research and practice, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
24 citing papers in PubMed, 64 citations in OpenAlex.
- Trends in Parent-Reported Developmental Disabilities: 2019-2024.Pediatrics · 2026Article
- Adult Clinical Outcomes, Diagnostic Loss and Predictors in Individuals Diagnosed With Autism in Childhood.Journal of autism and developmental disorders · 2026Article
- Delayed Milestones and Demographic Factors Relate to the Accuracy of Autism Screening in Females Using Spoken Language.Journal of autism and developmental disorders · 2026Article
- Factors Associated with the Loss of Attention-Deficit Hyperactivity Disorder Diagnosis in Children.Journal of clinical practice and research · 2025Article
- Sociodemographic and Clinical Characteristics of Children Who Lose the Autism Spectrum Disorder Diagnosis.Psychiatry and clinical psychopharmacology · 2025Article
- Risk of autism spectrum disorder at 18 months of age is associated with prenatal level of polychlorinated biphenyls exposure in a Japanese birth cohort.Scientific reports · 2024Article
- How to build resiliency in autistic individuals: an implication to advance mental health.BMC psychology · 2024Article
- Variation in identifying children and adolescents with disability and developmental disability in population-based public health surveys.Disability and health journal · 2024Article
- Autism spectrum disorder diagnosis based on deep unrolling-based spatial constraint representation.Medical & biological engineering & computing · 2023Article
- Case report: Transient symptoms of autism spectrum disorder in a 2-year-old boy.Clinical case reports · 2023Article
- Activation of the CA2-ventral CA1 pathway reverses social discrimination dysfunction in Shank3B knockout mice.Nature communications · 2023Article
- Can EEG Correlates Predict Treatment Efficacy in Children with Overlapping ASD and SLI Symptoms: A Case Report.Diagnostics (Basel, Switzerland) · 2022Article
- Learning Causal Effects From Observational Data in Healthcare: A Review and Summary.Frontiers in medicine · 2022Review
- The French Version of the Revised Ritvo Autism and Asperger Diagnostic Scale: A Psychometric Validation and Diagnostic Accuracy Study.Journal of autism and developmental disorders · 2021Article
- One-Year Follow-Up Diagnostic Stability of Autism Spectrum Disorder Diagnosis in a Clinical Sample of Children and Toddlers.Brain sciences · 2021Article
- Prevalence and Trends of Developmental Disabilities among Children in the United States: 2009-2017.Pediatrics · 2019Article
- Recognising autism: a latent transition analysis of parental reports of child autistic spectrum disorder 'red flag' traits before and after age 3.Social psychiatry and psychiatric epidemiology · 2019Article
- Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 4 Years - Early Autism and Developmental Disabilities Monitoring Network, Seven Sites, United States, 2010, 2012, and 2014.Morbidity and mortality weekly report. Surveillance summaries (Washington, D.C. : 2002) · 2019Article
- Article
- Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2012.Morbidity and mortality weekly report. Surveillance summaries (Washington, D.C. : 2002) · 2018Article
Corrections and comments
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Authors and funding
6 authors at 4 institutions in 1 country.
Funding
Abstract
Autism spectrum disorder diagnoses sometimes change due to misdiagnosis, maturation, or treatment. This study uses a probability-based national survey-the Survey of Pathways to Diagnosis and Services-to compare currently diagnosed (n = 1420) and previously diagnosed (n = 187) children aged 6-17 years based on retrospective parental reports of early concerns about their children's development, responses to those concerns by doctors and other healthcare providers, the type of provider who made the first autism spectrum disorder diagnosis, and the autism spectrum disorder subtype diagnoses received (if any). Propensity score matching was used to control for differences between the groups on children's current level of functioning and other current characteristics that may have been related to diagnosis loss. Approximately 13% of the children ever diagnosed with autism spectrum disorder were estimated to have lost the diagnosis, and parents of 74% of them believed it was changed due to new information. Previously diagnosed children were less likely to have parents with early concerns about verbal skills, nonverbal communication, learning, and unusual gestures or movements. They were also less likely to have been referred to and diagnosed by a specialist. Previously diagnosed children were less likely to have ever received a diagnosis of Asperger's disorder or autistic disorder.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.