ArticleAmerican journal of physical medicine & rehabilitation2015
Factors Associated with Mobility Outcomes in a National Spina Bifida Patient Registry.
Article in American journal of physical medicine & rehabilitation, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
28 citing papers in PubMed, 1 synthesis or guideline pooled it, 73 citations in OpenAlex.
- Design and Methodological Considerations of the Centers for Disease Control and Prevention Urologic and Renal Protocol for the Newborn and Young Child with Spina Bifida.The Journal of urology · 2016Guideline
- Trial
- Effects of a Standing Program for Ambulatory Children with Myelomeningocele: A Single-Subject Design.Healthcare (Basel, Switzerland) · 2025Article
- Machine Learning Algorithms for Prediction of Ambulation and Wheelchair Transfer Ability in Spina Bifida.Archives of physical medicine and rehabilitation · 2025Article
- Maternal-fetal surgery for myelomeningocele longitudinal follow-up model: Mitigation of care fragmentation through care coordination and outcomes reporting.Journal of pediatric rehabilitation medicine · 2025Review
- Postnatal myelomeningocele closure in smallest reported neonate: illustrative case.Journal of neurosurgery. Case lessons · 2024Article
- Brazilian Version of the Myelomeningocele Functional Classification (MMFC): Translation, Cultural Adaptation, and Psychometric Properties.Revista brasileira de ortopedia · 2023Article
- Physical function and activity, pain, and health status in adults with myelomeningocele after orthotic management from childhood: a descriptive study.BMC musculoskeletal disorders · 2023Article
- Motor function outcomes in children with open prenatal repair of Spina Bifida Aperta at 36-month follow-up: The Zurich cohort.Journal of pediatric rehabilitation medicine · 2023Article
- Weight Status of Children Participating in the National Spina Bifida Patient Registry.Pediatrics · 2022Article
- Pediatric Spina Bifida and Spinal Cord Injury.Journal of personalized medicine · 2022Article
- Spina Bifida: A Review of the Genetics, Pathophysiology and Emerging Cellular Therapies.Journal of developmental biology · 2022Review
- Use of the Physical Abilities and Mobility Scale (PAMS) in Children Receiving Inpatient Rehabilitation for Spinal Cord Related Paralysis.Developmental neurorehabilitation · 2022Article
- Establishing Content Validity Evidence of the Pittsburgh Impairment Testing Tool (PITT) for Adults With Spina Bifida.Topics in spinal cord injury rehabilitation · 2022Article
- Relationships among classifications of impairment and measures of ambulatory function for children with spina bifida.Disability and rehabilitation · 2021Article
- Growth profile assessment of young adults with tethered cord syndrome: a retrospective cohort analysis of Korean conscription data.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2021Article
- The Adolescent/Young Adult Self-Management and Independence Scale (AMIS-II): Expanding evidence for validity and reliability.Journal of pediatric rehabilitation medicine · 2021Article
- Quantitative Computed Tomography Assessment of Bone Deficits in Ambulatory Children and Adolescents with Spina Bifida: Importance of Puberty.JBMR plus · 2020Article
- Relationship Between Motor Level and Wheelchair Transfer Ability in Spina Bifida: A Study From the National Spina Bifida Patient Registry.Archives of physical medicine and rehabilitation · 2020Article
- Feasibility of a Commercially Available Virtual Reality System to Achieve Exercise Guidelines in Youth With Spina Bifida: Mixed Methods Case Study.JMIR serious games · 2020Article
Corrections and comments
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Authors and funding
11 authors at 2 institutions in 1 country.
Funding
Abstract
objectiveTo provide descriptive data on ambulatory ability and muscle strength in a large cohort of individuals with spina bifida enrolled in a National Spina Bifida Patient Registry and to investigate factors associated with ambulatory status.
designCross-sectional analysis of data from a multisite patient registry.
resultsDescriptive analysis of mobility variables for 2604 individuals with spina bifida aged 5 and older are presented from 19 sites in the United States. Analysis of a subset of National Spina Bifida Patient Registry data from 380 individuals from 3 sites accompanied by data from a specialized spina bifida electronic medical record revealed that those with no history of a shunt, lower motor level, and no history of hip or knee contracture release surgery were more likely to be ambulatory at the community level than at the household or wheelchair level.
conclusionThis study is the first to examine factors associated with ambulatory status in a large sample of individuals with myelomeningocele and nonmyelomeningocele subtypes of spina bifida. Results of this study delineate the breadth of strength and functional abilities within the different age groups and subtypes of spina bifida. The results may inform physicians of the characteristics of those with varying ambulatory abilities.
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Registered trials
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