Evidence map›Paper›PMID 26479567›Full record

ArticleThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics2015

Considerations for Returning Research Results to Culturally Diverse Participants and Families of Decedents.

Nanibaa A Garrison

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

1 author.

Nanibaa A GarrisonAssistant Professor in the Center for Biomedical Ethics and Society and in the Departments of Pediatrics and Anthropology at Vanderbilt University. She received her Ph.D. in genetics from Stanford University and completed a postdoctoral fellowship at the Stanford Center for Biomedical Ethics. She is Diné from the Navajo Nation.

Funding

Disclosing Genomic Incidental Findings in a Cancer Biobank: An ELSI ExperimentR01CA154517 · NCI · MAYO CLINIC ROCHESTER · PI KOENIG, BARBARA A., PETERSEN, GLORIA M. · 2011 to 2015
$2.7M
Return of Research Results from samples obtained for Newborn ScreeningR21HG006594 · NHGRI · JOHNS HOPKINS UNIVERSITY · PI LEWIS, MICHELLE HUCKABY · 2011 to 2012
$239k
NCI NIH HHS LRO1CA154517NCI NIH HHS R01 CA154517NHGRI NIH HHS R21 HG006594NHGRI NIH HHS R21HG006594-01
6 · The paper itself

Abstract

There has been considerable debate on which genomic research results to return to participants and when those results should be returned, but little attention to how those results should be returned, especially to minority and culturally diverse participants. This paper explores the cultural and ethical considerations around returning research results to participants and families of culturally diverse backgrounds, with a special focus on considerations when the research participant is deceased, and raises points for further discussion.

Indexed as

CultureDeathFamilyConsent FormsCultural DiversityDecision MakingDisclosureGenetic ResearchHumans

Identifiers

PMID26479567
PMCPMC4617668

What OpenQuestion holds

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Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.