Evidence map›Paper›PMID 26479566›Full record

ArticleThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics2015

Return of Results from Research Using Newborn Screening Dried Blood Samples.

Michelle Huckaby Lewis, Aaron J Goldenberg

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Michelle Huckaby LewisResearch Scholar in the Berman Institute of Bioethics at Johns Hopkins University. She received her B.A. degree in English and History from Stanford University, her J.D. degree from Vanderbilt University, and her M.D. degree from Tulane University School of Medicine. Her research focuses on legal and ethical issues related to genomic research.
Aaron J GoldenbergAssistant Professor of Bioethics and the Assistant Director of the Center for Genetic Research, Ethics, and Law at Case Western Reserve University. He received his B.S. degree in the Philosophy of Science from Michigan State University, his M.P.H. from the University of Michigan, and his Ph.D. in Bioethics from Case Western Reserve University. Dr. Goldenberg's research focuses on the ethical and social issues surrounding advances in public health genomics.

Funding

Disclosing Genomic Incidental Findings in a Cancer Biobank: An ELSI ExperimentR01CA154517 · NCI · MAYO CLINIC ROCHESTER · PI KOENIG, BARBARA A., PETERSEN, GLORIA M. · 2011 to 2015
$2.7M
Return of Research Results from samples obtained for Newborn ScreeningR21HG006594 · NHGRI · JOHNS HOPKINS UNIVERSITY · PI LEWIS, MICHELLE HUCKABY · 2011 to 2012
$239k
NCI NIH HHS 1-R01-CA154517NCI NIH HHS R01 CA154517NHGRI NIH HHS R21 HG006594NHGRI NIH HHS R21HG006594-01
6 · The paper itself

Abstract

There may be compelling reasons to return to parents a limited subset of results from research conducted using residual newborn screening dried blood samples (DBS). This article explores the circumstances under which research results might be returned, as well as the mechanisms by which state newborn screening programs might facilitate the return of research results. The scope of any responsibility to return results of research conducted using DBS should be assessed in light of the potential impact on the primary mission of state newborn screening programs.

Indexed as

Dried Blood Spot TestingDisclosureHumansInfant, NewbornNeonatal Screening

Identifiers

PMID26479566
PMCPMC4617190

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.