ArticleThe Journal of pediatrics2016
When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority.
Abstract read
In one paragraph
Article in The Journal of pediatrics, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed.
- Participant Perspectives on Data Sharing in Clinical Craniofacial Research: Qualitative Interviews With Participants With Craniofacial Microsomia and Their Caregivers.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026Article
- Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research.Journal of adolescent and young adult oncology · 2023Article
- Studying the impact of translational genomic research: Lessons from eMERGE.American journal of human genetics · 2023Review
- Reconsenting paediatric research participants for use of identifying data.Journal of medical ethics · 2023Article
- Adolescent Assent and Reconsent for Biobanking: Recent Developments and Emerging Ethical Issues.Frontiers in medicine · 2021Review
- Ethical and Policy Considerations for Genomic Testing in Pediatric Research: The Path Toward Disclosing Individual Research Results.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2019Article
- A Belmont Reboot: Building a Normative Foundation for Human Research in the 21st Century.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2019Article
- Anticipatory Waivers of Consent for Pediatric Biobanking.Ethics & human research · 2019Article
- Reconsidering the Need for Reconsent at 18.Pediatrics · 2018Review
- An Observational Study of Children's Involvement in Informed Consent for Exome Sequencing Research.Journal of empirical research on human research ethics : JERHRE · 2017Observational
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
17 authors.
Kyle B BrothersDepartment of Pediatrics, University of Louisville School of Medicine, Louisville, KY. Electronic address: kyle.brothers@louisville.edu.
Ingrid A HolmDivision of Genetics and Genomics, Boston Children's Hospital; The Manton Center for Orphan Disease Research, Boston Children's Hospital; Department of Pediatrics, Harvard Medical School, Boston, MA.
Janet E ChilderhoseCenter for Bioethics and Social Sciences in Medicine, University of Michigan, Ann Arbor, MI.
Armand H M AntommariaEthics Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH.
Barbara A BernhardtDepartment of Medicine, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA.
Ellen Wright ClaytonCenter for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN.
Bruce D GelbMindich Child Health and Development Institute, Departments of Pediatrics and Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY.
Steven JoffeDepartment of Medical Ethics and Health Policy, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA.
John A LynchDepartment of Communication, University of Cincinnati, Cincinnati, OH.
Jennifer B McCormickDivisions of General Internal Medicine and Health Care and Policy Research, and the Mayo Biomedical Ethics Program, Mayo Clinic, Rochester, MN.
Laurence B McCulloughCenter for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX.
D Williams ParsonsTexas Children's Cancer Center and Department of Pediatrics, Baylor College of Medicine, Houston, TX.
Agnes S SundaresanHenry Hood Center for Health Research, Geisinger Health System, Danville, PA.
Wendy A WolfDivision of Genetics and Genomics, Boston Children's Hospital.
Joon-Ho YuDepartment of Pediatrics, University of Washington.
Benjamin S WilfondTreuman Katz Center for Pediatric Ethics, Seattle Children's Hospital, Seattle, WA.
Pediatrics Workgroup of the Clinical Sequencing Exploratory Research (CSER) Consortium
Funding
Institutional Clinical and Translational Science AwardUL1TR000427 · NCATS · UNIVERSITY OF WISCONSIN-MADISON · PI DREZNER, MARC KENNETH · 2012 to 2016
$32.2MNorth Carolina Clinical Genomic Evaluation by Next-gen Exome Sequencing 2U01HG006487 · NHGRI · UNIV OF NORTH CAROLINA CHAPEL HILL · PI BERG, JONATHAN S, POWELL, BRADFORD C. · 2012 to 2021
$22.7MMeasuring Perceptions of Utility of Clinical Genome Sequencing: Instrument Testing and ValidationU01HG006485 · NHGRI · BAYLOR COLLEGE OF MEDICINE · PI MCGUIRE, AMY L, PARSONS, DONALD W. · 2012 to 2021
$22.1MMount Sinai Institutes for Clinical and Translational SciencesUL1TR000067 · NCATS · ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI · PI SAMPSON, HUGH A · 2012 to 2014
$16.5MGenomic Basis of Susceptibility to COVID-19 Infection and its ComplicationsU01HG006379 · NHGRI · MAYO CLINIC ROCHESTER · PI Richard R. Sharp · 2011 to 2026
$16.5MVariation, Function, and Disease Supplement ProgramU01HG008657 · NHGRI · UNIVERSITY OF WASHINGTON · PI David Russell Crosslin, Gail Pairitz Jarvik · 2015 to 2026
$13.4MIntegration of Whole Genome Sequencing into Clinical MedicineU01HG006500 · NHGRI · BRIGHAM AND WOMEN'S HOSPITAL · PI GREEN, ROBERT C. · 2012 to 2016
$11.5MClinical sequencing in cancer: Clinical ethical and technological studiesU01HG006507 · NHGRI · UNIVERSITY OF WASHINGTON · PI JARVIK, GAIL PAIRITZ · 2012 to 2016
$10.6MApplying Genomic Sequencing in PediatricsU01HG006546 · NHGRI · CHILDREN'S HOSP OF PHILADELPHIA · PI KRANTZ, IAN D. · 2012 to 2016
$10.6MClinical Implementation of Carrier Testing using NGSUM1HG007292 · NHGRI · KAISER FOUNDATION RESEARCH INSTITUTE · PI GODDARD, KATRINA A., WILFOND, BENJAMIN SIMON · 2013 to 2016
$8.2MSequencing, Analysis, and Interpretation of SequencingUM1HG006508 · NHGRI · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI PIENTA, KENNETH J., ROBERTS, SCOTT · 2013 to 2016
$7.8MGenomic Diagnosis in Children with Developmental DelayUM1HG007301 · NHGRI · HUDSON-ALPHA INSTITUTE FOR BIOTECHNOLOGY · PI COOPER, GREGORY MICHAEL, MYERS, RICHARD M · 2013 to 2016
$7.5MNCATS NIH HHS UL1 TR000067NCATS NIH HHS UL1 TR000427NCI NIH HHS R01 CA154517NHGRI NIH HHS R01 HG004500NHGRI NIH HHS R01 HG006600NHGRI NIH HHS R01HG006600NHGRI NIH HHS R01 HG006615NHGRI NIH HHS R01 HG006618NHGRI NIH HHS R21 HG006594NHGRI NIH HHS R21 HG006596NHGRI NIH HHS R21 HG006612NHGRI NIH HHS R21 HG006613NHGRI NIH HHS U01 HG006375NHGRI NIH HHS U01 HG006378NHGRI NIH HHS U01HG006378NHGRI NIH HHS U01 HG006379NHGRI NIH HHS U01HG006379NHGRI NIH HHS U01 HG006380NHGRI NIH HHS U01HG006380NHGRI NIH HHS U01 HG006382NHGRI NIH HHS U01HG006382NHGRI NIH HHS U01 HG006385NHGRI NIH HHS U01HG006385NHGRI NIH HHS U01 HG006388NHGRI NIH HHS U01HG006388NHGRI NIH HHS U01 HG006389NHGRI NIH HHS U01HG006389NHGRI NIH HHS U01 HG006485NHGRI NIH HHS U01 HG006487NHGRI NIH HHS U01HG006487NHGRI NIH HHS U01 HG006492NHGRI NIH HHS U01 HG006500NHGRI NIH HHS U01 HG006507NHGRI NIH HHS U01 HG006546NHGRI NIH HHS U01 HG006828NHGRI NIH HHS U01HG006828NHGRI NIH HHS U01 HG006830NHGRI NIH HHS U01HG006830NHGRI NIH HHS U01 HG007278NHGRI NIH HHS U01 HG007307NHGRI NIH HHS U01 HG008657NHGRI NIH HHS U01 HG008673NHGRI NIH HHS U01 HG008684NHGRI NIH HHS UM1 HG006508NHGRI NIH HHS UM1 HG007292NHGRI NIH HHS UM1 HG007301
Abstract
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Indexed as
Biomedical ResearchGenomicsInformed ConsentResearch SubjectsAge FactorsChildHumansYoung Adult
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