SynthesisQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2016
Measuring the impact of informal elderly caregiving: a systematic review of tools.
Synthesis in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04093245 (Supporting the Creation of a LEARNing INteGrated Health System to Mobilize Context-adapted Knowledge With a Wiki Platform to Improve the Transitions of Frail Seniors From From Hospitals and Emergency Departments to the cOMmunity), which is not on this map. Cited by 41 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Supporting the Creation of a LEARNing INteGrated Health System to Mobilize Context-adapted Knowledge With a Wiki Platform to Improve the Transitions of Frail Seniors From From Hospitals and Emergency Departments to the cOMmunity: Phase II
Who cites it
41 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Impact of pediatric tracheostomy on family caregivers' burden and quality of life: a systematic review and meta-analysis.Frontiers in public health · 2024Pooled it
- Gendered experiences of providing informal care for older people: a systematic review and thematic synthesis.BMC health services research · 2021Pooled it
- Factors associated with caregiving burden of family caregivers of older adults with disability, Kathmandu, Nepal.BMC geriatrics · 2026Article
- Core needs screening items for informal caregivers of older adults: an online modified Delphi study.BMC geriatrics · 2025Article
- Development and validation of a carer need screening tool (CNST-11) for carers of older adults: a need-stratified tool for services matching.The Gerontologist · 2025Article
- Home Caregivers of Elderly People: Perceptions and Quality of Life.Geriatrics (Basel, Switzerland) · 2025Article
- The CarerQol Instrument: A Systematic Review, Validity Analysis, and Generalization Reliability Study.Journal of clinical medicine · 2025Review
- A scoping review to examine health care professionals' experiences as family caregivers.PloS one · 2025Article
- Caregiving burdens of task time and task difficulty among paid and unpaid caregivers of persons living with dementia.Frontiers in public health · 2025Article
- Long-term care insurance and labor-force participation of adult children: an analysis of substitution and anticipation effects.Frontiers in public health · 2025Article
- Caregivers' burden of care during emergency department care transitions among older adults: a mixed methods cohort study.BMC geriatrics · 2024Observational
- On spillovers in economic evaluations: definition, mapping review and research agenda.The European journal of health economics : HEPAC : health economics in prevention and care · 2024Review
- The challenge of identifying family carers in general practice at an early stage and measuring their burden: A scoping review of possible tools and their actual use.Journal of family medicine and primary care · 2024Article
- Gender Inequalities of Health and Quality of Life in Informal Caregivers in Spain: Protocol for the Longitudinal and Multicenter CUIDAR-SE Study.JMIR research protocols · 2024Article
- Health and economic impact of caregiving on informal caregivers of people with chronic diseases in sub-Saharan Africa: A systematic review.PLOS global public health · 2024Article
- Article
- Changing dynamics of caregiving: a meta-ethnography study of informal caregivers' experiences with older immigrant family members in Europe.BMC health services research · 2023Review
- Sociodemographic, clinical, and psychosocial factors associated with burden in older caregivers: a cross-sectional study.Dementia & neuropsychologia · 2023Article
- Transcultural adaptation of the revised caregiving appraisal scale (RCAS) in the Spanish population.International journal of older people nursing · 2023Article
- Caregiver burden and its prevalence, measurement scales, predictive factors and impact: a review with an Asian perspective.Singapore medical journal · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo classify and identify the main characteristics of the tools used in practice to assess the impact of elderly caregiving on the informal carers' life.
methodsA systematic review of literature was performed searching in Embase, MEDLINE, PsycINFO, CINAHL, IBECS, LILACS, SiiS, SSCI and Cochrane Library from 2009 to 2013 in English, Spanish, Portuguese and French, and in reference lists of included papers.
resultsThe review included 79 studies, among them several in languages other than English. Their inclusion increased the variety of identified tools to measure this impact (n = 93) and allowed a wider analysis of their geographical use. While confirming their overlapping nature, instruments were classified according to the degree of integration of dimensions they evaluated and their specificity to the caregiving process: caregiver burden (n = 20), quality of life and well-being (n = 11), management and coping (n = 21), emotional and mental health (n = 29), psychosocial impact (n = 10), physical health and healthy habits (n = 2), and other measures. A high use in practice of tools not validated yet and not caregiver-specific was identified.
conclusionsThe great variety and characteristics of instruments identified in this review confirm the complexity and multidimensionality of the effects of elderly caregiving on the informal carer's life and explain the difficulties to assess these effects in practice. According to the classification provided, caregiver burden and emotional and mental health are the most evaluated dimensions. However, further work is required to develop integrated and caregiving focused procedures that can appraise this complexity across different countries and cultures.
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Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.