ArticleOral diseases2016
Quality of life of family caregivers of children with orofacial clefts in Nigeria: a mixed-method study.
Article in Oral diseases, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 2 of them syntheses that pooled it.
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Who cites it
19 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Improving the quality of life of parents of patients with congenital abnormalities using psychoeducational interventions: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Pooled it
- Quality of life of parents with children with congenital abnormalities: a systematic review with meta-analysis of assessment methods and levels of quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Pooled it
- Assessing Quality of Life and Associated Factors Among Caregivers of Children With Chronic Conditions at Tamale Teaching Hospital: A Cross-Sectional Study.Health science reports · 2026Article
- Human-Centered Design of a Contextualized Service Delivery Model for Families of Infants With Major Congenital Anomalies in Kenya.Birth defects research · 2026Article
- Article
- Challenges and coping mechanisms among caregivers of children with orofacial cleft in a Nigerian teaching hospital: photovoice approach.Frontiers in oral health · 2025Article
- Impact of Multidisciplinary Cleft Team Care on Oral Health Quality of Life in Children With Unilateral Cleft Lip and Palate: A Focus on Early Intervention vs. Sporadic Treatment.International journal of dentistry · 2025Article
- Quality of Life of the Primary Caregivers of Children with Cleft Lip and Palate in Guanajuato, Mexico: A Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2024Article
- What are they considering when they face a fetus with birth defects? A qualitative study on ethical attitudes of health professionals in China.Global health research and policy · 2024Article
- The burden, prevention and care of infants and children with congenital anomalies in sub-Saharan Africa: A scoping review.PLOS global public health · 2023Article
- Early Postnatal Care: Exploring Primary Caregivers' Experiences of Continuity of Care After Discharge at Selected Districts in Limpopo Province South Africa.Patient preference and adherence · 2022Article
- A comparative assessment of oral health-related quality of life of children born with orofacial clefts in Sudan and their caregivers'.BMC oral health · 2021Article
- Resilience and Related Factors: A Comparison of Fathers and Mothers of Patients With Cleft Lip and/or Palate in China.Frontiers in psychiatry · 2021Article
- Predictors of Quality of Life among Parents of Children with Chronic Diseases: A Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2020Article
- Oral health related quality of life of children and adolescents affected by rare orofacial diseases: a questionnaire-based cohort study.Orphanet journal of rare diseases · 2019Article
- Parent Observations of the Health Status of Infants With Clefts of the Lip: Results From Qualitative Interviews.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2019Article
- Genomic analyses in African populations identify novel risk loci for cleft palate.Human molecular genetics · 2019Article
- The socioeconomic impact of a pediatric ostomy in Uganda: a pilot study.Pediatric surgery international · 2018Article
- Oral health-related quality of life of children with oral clefts and their families.Journal of applied oral science : revista FOB · 2018Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundOrofacial clefts (OFCs) are common birth defects that may impose a large burden on the health and psychosocioeconomic well-being of affected individuals and families. This study aims to identify qualitative factors that affect the quality of life (QOL) of family caregivers of children with OFCs.
methodsA mixed-method study in which family caregivers of OFCs children were consecutively recruited from cleft clinics over a 3-month period. Quantitative data were analyzed using SPSS version 17 and focus group discussion by framework analysis.
resultsA total of 107 caregivers participated in the entire study, and 24 caregivers participated in the focus group discussions. About 50% of the children had cleft lip and palate (CLP), 28% with cleft lips only (CL) and 23.4% with cleft palate only (CP). Poor access to specific information and lack of empathy of professionals affected the quality of life and delivery of family-centered care.
conclusionsTo improve the quality of life of family caregivers, individual-focused counseling sessions should be organized for caregivers soon after birth. This will provide an opportunity to discuss the laid out plans for supportive care. It will also be as an avenue to address the arising social issues by health professionals and counselors.
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