Evidence map›Paper›PMID 26452630›Full record

ArticleThorax2016

International Committee on Mental Health in Cystic Fibrosis: Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus statements for screening and treating depression and anxiety.

Alexandra L Quittner, Janice Abbott, Anna M Georgiopoulos, Lutz Goldbeck, Beth Smith, Sarah E Hempstead, Bruce Marshall, Kathryn A Sabadosa, Stuart Elborn, International Committee on Mental Health and 1 more

2 registry-linked trialsOpen access · hybridAbstract readConsensus Statement
PubMed Full text at PMC Publisher
In one paragraph

Article in Thorax, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 147 papers, 8 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
147citing papers in PubMed, 8 pooled it
21.8field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06012084 nacompletednot on this mapstarted 2023, after this paper: background citation

The Development and Evaluation of an Internet-delivered Mental Health Prevention Program for Healthy Child Siblings of Individuals With Cystic Fibrosis

TypeinterventionalSponsorUniversity of ReginaRan2023 to 2024Enrolled9ConditionsCystic Fibrosis, Siblings, Mental Health, Internet-based InterventionArmsInternet-delivered Cystic Fibrosis Mental Health Prevention, Wellness, and Resource (iCF-PWR) program
NCT06020274 nanot yet recruitingnot on this mapstarted 2025, after this paper: background citation

Internet-delivered Cystic Fibrosis Mental Health Prevention, Wellness, Resource (iCF-PWR) Program: How Does it Work?

TypeinterventionalSponsorUniversity of ReginaRan2025 to 2027Enrolled120ConditionsCystic Fibrosis in Children, Siblings, Mental Health, Internet-based InterventionArmsInternet-delivered Cystic Fibrosis Mental Health Prevention, Wellness, and Resource (iCF-PWR) program
3 · Its place in the literature

Who cites it

147 citing papers in PubMed, 8 syntheses or guidelines pooled it, 432 citations in OpenAlex.

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87 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

11 authors at 8 institutions in 4 countries.

Alexandra L QuittnerUniversity of Miami, Coral Gables, Florida, USA.
Janice AbbottSchool of Psychology, University of Central Lancashire, Preston, UK.
Anna M GeorgiopoulosDepartment of Child and Adolescent Psychiatry, Massachusetts General Hospital, Boston, Massachusetts, USA.
Lutz GoldbeckDepartment of Child and Adolescent Psychiatry/Psychotherapy, University Hospital Ulm, Ulm, Germany.
Beth SmithDivision of Child and Adolescent Psychiatry, State University of New York, Buffalo, New York, USA.
Sarah E HempsteadThe Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine at Dartmouth, Lebanon, New Hampshire, USA.
Bruce MarshallCystic Fibrosis Foundation, Bethesda, Maryland, USA.
Kathryn A SabadosaThe Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine at Dartmouth, Lebanon, New Hampshire, USA.
Stuart ElbornQueen's University, Belfast, UK.
International Committee on Mental Health
EPOS Trial Study Group
Dartmouth Institute for Health Policy and Clinical Practice · USCystic Fibrosis Foundation · USMassachusetts General Hospital · USQueen's University · CAState University of New York · USUniversity Hospital Ulm · DEUniversity of Central Lancashire · GBUniversity of Miami · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Studies measuring psychological distress in individuals with cystic fibrosis (CF) have found high rates of both depression and anxiety. Psychological symptoms in both individuals with CF and parent caregivers have been associated with decreased lung function, lower body mass index, worse adherence, worse health-related quality of life, more frequent hospitalisations and increased healthcare costs. To identify and treat depression and anxiety in CF, the CF Foundation and the European CF Society invited a panel of experts, including physicians, psychologists, psychiatrists, nurses, social workers, a pharmacist, parents and an individual with CF, to develop consensus recommendations for clinical care. Over 18 months, this 22-member committee was divided into four workgroups: Screening; Psychological Interventions; Pharmacological Treatments and Implementation and Future Research, and used the Population, Intervention, Comparison, Outcome methodology to develop questions for literature search and review. Searches were conducted in PubMed, PsychINFO, ScienceDirect, Google Scholar, Psychiatry online and ABDATA by a methodologist at Dartmouth. The committee reviewed 344 articles, drafted statements and set an 80% acceptance for each recommendation statement as a consensus threshold prior to an anonymous voting process. Fifteen guideline recommendation statements for screening and treatment of depression and anxiety in individuals with CF and parent caregivers were finalised by vote. As these recommendations are implemented in CF centres internationally, the process of dissemination, implementation and resource provision should be closely monitored to assess barriers and concerns, validity and use.

Indexed as

Practice Guidelines as TopicCaregiversCystic FibrosisHumansInternational CooperationMental DisordersQuality of LifeSocieties, MedicalCystic FibrosisPsychology

Identifiers

PMID26452630
PMCPMC4717439
OpenAlexW2210324311

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.