ReviewRevista latino-americana de enfermagem
Burden and quality of life of mothers of children and adolescents with chronic illnesses: an integrative review.
Review in Revista latino-americana de enfermagem. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Effects of caregiver-involved interventions on the quality of life of children and adolescents with chronic conditions and their caregivers: a systematic review and meta-analysis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019Pooled it
- Resourcefulness Intervention Efficacy for Parent Caregivers of Technology-Dependent Children: A Randomized Trial.Western journal of nursing research · 2022Trial
- Caregiver burden experienced by mothers of infants who are HIV exposed uninfected compared to infants HIV unexposed: A prospective cohort study in Worcester, South Africa.Journal of tropical pediatrics · 2026Article
- Impact of CFTR modulators on caregiver burden in cystic fibrosis: a cross-sectional study in Brazil.Orphanet journal of rare diseases · 2026Article
- Health-related quality of life of children born with very low birth weight and their caregivers in China: a cross-sectional survey.Translational pediatrics · 2026Article
- Experiences of family caregivers regarding the health of children with congenital craniofacial anomalies in Colombia.PLOS global public health · 2026Article
- SCaRES - scoliosis caregiver response and emotional scale: a Rasch-validated questionnaire to measure the psychological impact of children's scoliosis on their parents.European spine journal : official publication of the European Spine Society, the European Spinal Deformity Society, and the European Section of the Cervical Spine Research Society · 2025Article
- Quality of Life, Caregiver Burden, and Symptoms of Depression and Anxiety in Parents of Children with Spinal Muscular Atrophy: A Comparison with Healthy Controls.Medicina (Kaunas, Lithuania) · 2025Article
- Assessing the Impact of a Telemedicine Program on Caregivers of Children With Complex Chronic Conditions: Pre-Post Intervention Study.JMIR pediatrics and parenting · 2025Article
- A qualitative analysis of patient and caregiver experiences with myelomeningocele through online discussion boards.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2024Article
- The impact of raising a child with a developmental or physical health condition in Ethiopia.Research in developmental disabilities · 2024Article
- Undernutrition in young children with congenital heart disease undergoing cardiac surgery in a low-income environment.BMC pediatrics · 2024Observational
- Mothers' perspectives of physical and psychological issues associated with caring for Ghanaian children living with tuberculosis: A qualitative study.Nursing open · 2023Article
- Quality of Life, Physical and Mental Health, and Economic Evaluation of Family Caregivers of Chronic Dependent Children: INFAPRINT Cohort Study Protocol.International journal of environmental research and public health · 2023Article
- Caregiving burden and special needs of parents in the care of their short-statured children - a qualitative approach.Frontiers in endocrinology · 2023Article
- Primary ovarian insufficiency quality of life scale (POIQOLS): development and psychometric properties.BMC women's health · 2022Review
- The impact of psychiatric disorders on caregivers: An integrative predictive model of burden, stigma, and well-being.Perspectives in psychiatric care · 2022Article
- 10Vida: A Mental and Physical Health Intervention for Chronically Ill Adolescents and Their Caregivers in the Hospital Setting: An Open Study.International journal of environmental research and public health · 2022Article
- Internet-Administered Cognitive Behavioral Therapy for Common Mental Health Difficulties in Parents of Children Treated for Cancer: Intervention Development and Description Study.JMIR formative research · 2021Article
- The Burden of Primary Caregivers of Spinal Muscular Atrophy Patients and Their Needs.Turkish archives of pediatrics · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveto identify and analyze the evidence available regarding evaluation of burden and quality of life of mothers who are caregivers for children and adolescents with chronic illnesses.
methodan integrative review, undertaken in the electronic sources MEDLINE; Academic Search Premier; CINAHL; LILACS; SciELO and PubMed, between 2010 and 2014.
resultsamong the 22 documents selected, there was a predominance of convenience samples and non-experimental transversal designs, at the levels IV and III2. The caregiver burden scales used were the Zarit Burden Interview and Montgomery-Borgatta Caregiver Burden Scale-Revised along with the following instruments for evaluating quality of life: The World Health Organization Quality of Life-BREF Scale; Self-report questionnaires; The Ulm Quality of Life Inventory for Parents of chronically ill children; Asthma Caregiver Quality of Life Questionnaire; and the Nottingham Health Profile. Quality-of-life appears to be influenced in a complex and interrelated way by the physical and mental health of the mothers who are caregivers, in accordance with their level of independence, social relationships, environment, and the extent to which they see themselves as burdened.
conclusionthe revealing of the results for the evaluation of burden and quality of life of mothers who are caregivers has implications for the planning and implementation of effective interventions, by the multidisciplinary team, if they are to relieve the burden.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.