Evidence map›Paper›PMID 26438317›Full record

ArticleBMC health services research2015

Integrating care for individuals with FASD: results from a multi-stakeholder symposium.

Paul Masotti, Sally Longstaffe, Holly Gammon, Jill Isbister, Breann Maxwell, Ana Hanlon-Dearman

Open access · goldAbstract readConference Proceedings
In one paragraph

Article in BMC health services research, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
1.7field-weighted citation impact, top 12% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 34 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 2 countries.

Paul MasottiCommunity Wellness Department, Native American Health Center, 3124 International Blvd. Ste 214, Oakland, CA, 94601, USA. paulm@nativehealth.org.
Sally LongstaffeChildren's Hospital of Winnipeg, University of Manitoba, CK253-840 Sherbrook Street, Winnipeg, Manitoba, R3A 1S1, Canada. SLongstaffe@exchange.hsc.mb.ca.
Holly GammonHealthy Child Manitoba Office, Government of Manitoba, 3rd Floor - 332 Bannatyne Avenue, Winnipeg, Manitoba, R3A 0E2, Canada. holly.gammon@gov.mb.ca.
Jill IsbisterHealthy Child Manitoba Office, Government of Manitoba, 3rd Floor - 332 Bannatyne Avenue, Winnipeg, Manitoba, R3A 0E2, Canada. Jill.Isbister@gov.mb.ca.
Breann MaxwellManitoba FASD Centre, 633 Wellington Crescent, Winnipeg, Manitoba, R3M 0A8, Canada. bmaxwell@rccinc.ca.
Ana Hanlon-DearmanChildren's Hospital of Winnipeg, University of Manitoba, CK253-840 Sherbrook Street, Winnipeg, Manitoba, R3A 1S1, Canada. ahdearman@exchange.hsc.mb.ca.
Government of Manitoba · CAUniversity of Manitoba · CANative American Health Center · US

Funding

Canadian Institutes of Health Research
6 · The paper itself

Abstract

backgroundFetal Alcohol Spectrum Disorder (FASD) has a significant impact on communities and systems such as health, education, justice and social services. FASD is a complex neurodevelopmental disorder that results in permanent disabilities and associated service needs that change across affected individuals' lifespans. There is a degree of interdependency among medical and non-medical providers across these systems that do not frequently meet or plan a coordinated continuum of care. Improving overall care integration will increase provider-specific and system capacity, satisfaction, quality of life and outcomes.

methodsWe conducted a consensus generating symposium comprised of 60 experts from different stakeholder groups: Allied & Mental Health, Education, First Nations & Métis Health, Advocates, Primary Care, Government Health Policy, Regional FASD Coordinators, Social Services, and Youth Justice. Research questions addressed barriers and solutions to integration across systems and group-specific and system-wide research priorities. Solutions and consensus on prioritized lists were generated by combining the Electronic Meeting System approach with a modified 'Nominal Group Technique'.

resultsFASD capacity (e.g., training, education, awareness) needs to be increased in both medical and non-medical providers. Outcomes and integration will be improved by implementing: multidisciplinary primary care group practice models, FASD system navigators/advocates, and patient centred medical homes. Electronic medical records that are accessible to multiple medical and non-medical providers are a key tool to enhancing integration and quality. Eligibility criteria for services are a main barrier to integration across systems. There is a need for culturally and community-specific approaches for First Nations communities.

conclusionsThere is a need to better integrate care for individuals and families living with FASD. Primary Care is well positioned to play a central and important role in facilitating and supporting increased integration. Research is needed to better address best practices (e.g., interventions, supports and programs) and long-term individual and family outcomes following a diagnosis of FASD.

Indexed as

ConsensusContinuity of Patient CareDelivery of Health Care, IntegratedFetal Alcohol Spectrum DisordersInterdisciplinary CommunicationFemaleHealth PolicyHumansPersons with DisabilitiesPregnancyPrimary Health CareQuality of LifeSocial Work

Identifiers

PMID26438317
PMCPMC4594899
OpenAlexW2118713306

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.