ArticleBMC public health2015
A telephone survey of factors affecting willingness to participate in health research surveys.
Article in BMC public health, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 92 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
92 citing papers in PubMed, 1 synthesis or guideline pooled it, 178 citations in OpenAlex.
- Will patient data collection methods change after a pandemic? A systematic review of the strengths, challenges and opportunities of this new scenario.European journal of orthopaedic surgery & traumatology : orthopedie traumatologie · 2025Pooled it
- Long COVID Optimal Health Programme to Enhance Mental and Physical Health: A Feasibility Randomised Controlled Trial.Health expectations : an international journal of public participation in health care and health policy · 2025Trial
- Trial
- Trial
- Establishment of a cohort for deep phenotyping of the immune response to influenza vaccination among elderly individuals recruited from the general population.Human vaccines & immunotherapeutics · 2017Trial
- Public awareness and knowledge of antibiotic use and antimicrobial resistance in Malta.BMC public health · 2026Article
- Expectations of dog and cat owners when dealing with veterinary errors and the emotional impact of such errors.The Veterinary record · 2026Article
- Ethical perspectives of Brazilian community pharmacists: a pilot study.BMC medical ethics · 2026Article
- Sex-specific associations between loneliness and hair cortisol among older African American adults.Psychoneuroendocrinology · 2026Article
- Inattention and Hyperactivity Symptom Dimensions of ADHD Differentially Moderate the Relationship Between Concurrent Attention States and Affective Valence.Journal of attention disorders · 2026Article
- Child maltreatment in Canada: prevalence and gender differences among youth.Health promotion and chronic disease prevention in Canada : research, policy and practice · 2026Article
- The COVID-19 Pandemic as a Lesson: WHO Actions Versus the Expectations of Medical Staff-Evidence from Poland.Journal of clinical medicine · 2026Article
- Article
- Counting the Cost: The Hidden Financial Realities of Neuromuscular Disease Through Patient and Family Perspectives.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Shaping the WHO Sexual Health Assessment of Practices and Experiences questionnaire: a descriptive study on the real-world example from Portugal.Sexual and reproductive health matters · 2025Article
- Willingness of the Chinese public to participate in medical research during a pandemic: A cross-sectional study.Medicine · 2025Article
- Patients and Communities Shape Regional Health Research Priorities: A Participatory Study from South Tyrol, Italy.Healthcare (Basel, Switzerland) · 2025Article
- Characteristics of Suicidal Patients Who Engaged in Suicide-Related Internet Use in the United Kingdom: Cross-Sectional Survey Findings.JMIR mental health · 2025Article
- Understanding patient needs and preferences for joint protection in hand osteoarthritis through mixed methods patient co-design.Scientific reports · 2025Article
- Identifying areas for action to create healthier diets in the London Borough of Newham: systems mapping with residents.BMC public health · 2025Article
32 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundIn recent years, reduced participation has been encountered across all epidemiological study designs, both in terms of non-response as well as refusal. A low response rate may reduce the statistical power but, more importantly, results may not be generalizable to the wider community.
methodsIn a telephone survey of 1413 randomly selected members of the Australian general population and of 690 participants sourced from previous studies, we examined factors affecting people's stated willingness to participate in health research.
resultsThe majority of participants (61 %) expressed willingness to participate in health research in general but the percentage increased when provided with more specific information about the research. People were more willing if they have personal experience of the disease under study, and if the study was funded by government or charity rather than pharmaceutical companies. Participants from previous studies, older people and women were the groups most willing to participate. Younger men preferred online surveys, older people a written questionnaire, and few participants in any age and sex groups preferred a telephone questionnaire.
conclusionDespite a trend toward reduced participation rates, most participants expressed their willingness to participate in health research. However, when seeking participants, researchers should be concrete and specific about the nature of the research they want to carry out. The preferred method of recommended contact varies with the demographic characteristics.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.